Could My Daughter Have Cd?

[lynda-29]

I have been trying to figure out what's wrong with my daughter since she was 9 months old, I found this site today and she sounds like she has a lot of the symptoms, but I could be just paranoid.

Since she was about 8-9 months old she got a rash on her bum, I could not get rid of, I can get rid of it with a certain cream, but if I don't use it she will get the rash again. It

[Guest nini]

it could be. Try keeping a food diary and tracking any and all reactions that occur after eating.

for ex. breakfast, cheerios, milk... immediate reactions. none noted, 10 minutes, none noted, 30 minutes cranky and irritable, 45 minutes, diarreah diaper and sore bum

lunch turkey bologne, cheese, juice immediate reactions, none noted, no reactions noted, happy baby

snack saltines,water, immediate reaction, vomiting, 20 minutes diarreah diaper...

and so on... remember this is just an example. Try charting what she reacts to for a few days, then if it appears to be only when she eats something obvious with wheat, you might want to try the gluten free diet. Talk to her pediatrician though because you really don't want to do this all by yourself.

NOW, if the ped.s office dismisses your theory of possible celiac, don't give up. Try to educate them on what you have learned so far researching your daughters symptoms.

Ultimately you are your child's best advocate, and you know your child best. If you do decide that you see a pattern and want to try the gluten-free diet, this board is a terrific resource. We'll help make it easy for you!

[VydorScope]

Lynda, sounds like your at the exact stage I am at with my 21 month old. IF you treat celiac disease as if it were an allergy, its easy to test for at home...

I suggest you you put her on a gluten-free diet for at least week. Be very careful that you realy are gluten-free, even if it means nothing from the bread/grains group at all. Eggs for breakfast instead of cereal, rice instead of pasta, etc. See if she improves. If so then you know that something you eliminated was the problem. So to test if its gluton, give her some foods high in gluton, bread, whole wheat crackers, somthing like that. If her behavior starts to revert, you have your answer.

Thats how you find any tradtional allegery with out doctor intervention. Its free, and conclusive if your careful about it. The only other way would be to convice your docotor to do a blood test for you, which in all liklyhood take just as long, and cost you more.

And for the picky out there I know that celiac disease is not an allergy, but for testing methodolgy here, it can be considered as such.

[Merika]

It's true you can figure out what she should eat via an elimination diet. BUT personally, I would want to know if I had a wheat allergy (unpleasant but nothing more) or celiac, and possible larger health ramifications down the road caused by non-strict dietary compliance (think teenager....) or accidental long-term ingestion or....and I would NOT want to take a gluten challenge for 6 months, just to take a blood test, that had someone bothered to do while I was actually eating the stuff would be nearly painless....

Anyway, as an adult, that's my very opinionated .02

Merika

[key]

We have done blood tests. I am not sure at this point if they did all of them, but they never mentioned that it was celiac. The endocrinologist said to me one day, "well at least you know it isn't celiac"! Well, after a couple of months of him being so sick and me researching on the computer, I find out that he has a ton of symptoms of celiac. So I just put him on the diet. He had his first normal stool EVER!! Now he has normal stools all the time! Started eating, gaining weight, etc.

I guess my point is to be VERY sure the doctors know what they are doing. I would try the diet, even if they tell you it isn't celiac. I mean if you aren't finding any other solutions to what is going on. Plus I am wondering if insurance can drop you if you have this diagnoses? Anybody have this happen? My son already probably has something called Neurofibromatosis1 (just from some birthmarks he has). Anyway, I was told if they put it on his chart, that insurance could drop him.

Nice huh! That is SO maddening to me. It is quite obvious to my husband and I what was making our son so sick.

Yes, it does sound like it could be celiac, but it I guess it could be an allergy to another food too.

Monica

[Merika]

Yeah, there are several different blood tests, and the docs need to run the whole celiac "panel" not just the 1 or 2 tests that are cheaper and they're usually tempted to do. Also, I've heard that blood tests on very young kids are not always accurate. Anybody here know more about this?

And Monica, hey if the diet works then it's definitely worth it!

Merika

[Guest Lucy]

my son was diagnosed with type 1 diabetes in july 04 and celiac in November 04. Your daughter has alot of the symptoms my son had.

Both Type 1 diabetes and celiac are auto immunr diseases. The rash on the butt was one of his first symptoms of diabetes. Also the clingyness. But now I don't know if that was the celiac or the diabetes.

I would ask them to do more tests. If your dr doesn't want to, then insist on it.

[lynda-29]

I took her to the doctor today and told him she has a lot of symptoms of celiac disease but he said all the symptoms could be normal and told me to keep a food diary for a week, if I think she's reacting to wheat he gave me a form for her to get tested. I noticed he also put a glucose test on it too. I think I'm just going to go get her tested tomorrow.

My husband has Type 1 diabetes, so I usually test her every few months. I guess it's time to test her again. The only symptoms of diabetes that I've been watching out for is thristy and peeing a lot. Are there any more I should be watching out for?