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How To Bring It Up With Doctor?

ne-mom

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ne-mom Newbie
ne-mom
Posted

Hi everyone, I've been lurking on this board for a couple of months now and have found it very informative. A bit of background: for years I have had intermittent spells of nausea, mostly noticeable upon waking. More recently, however, I began randomly having pain in the upper center of my stomach. I would go months without this happening, but a couple of months back it lasted for 3 days and I was miserable. This got me to the doctor who thought it sounded like gallstones (that's what I suspected too) so she sent me for an ultrasound. Well, that turned up nothing. Everything looked fine, no stones, no irritation anywhere in my abdominal region. For the past month or so, though, things have really taken a turn for the worse. I will get instantly bloated after eating, I look like I did when I was pregnant. I get really nauseated and feel a general dull pain all over my stomach. It happened a few nights ago and I'm still not feeling back to normal. It almost feels like I have obstruction somewhere. The only thing that seems to help is drinking really hot tea. Oh, this last episode actually brought on a round of diarrhea, but that really did nothing to relieve the discomfort.

OK, all of this to say, that while I'm not certain, I suspect Celiac. When I think back to the times I've had these episodes, it's been after eating things like seitan, cous-cous, beer or whatever. I will say that eating these things does not necessarily cause it, though. I can go days eating whatever and feeling just fine. So I'm seeing my doctor again tomorrow and am really afraid she's going to give me the IBS diagnosis. I don't know why, but I just feel like this isn't IBS, but something else. So how do I argue my case, so to speak? It's my understanding that most doctors don't just come right out and suggest testing for Celiac disease. Should I just tell her upfront I want to be checked for that? Should I try just changing my diet and going back later if I see any results? This probably seems like a dumb question, but I'm very non-confrontational and also somewhat distrusting of doctors so this isn't a great scenario for me to be in. Thanks for your advice.

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lynnelise Apprentice
lynnelise
Posted

I would just come out and say that you've been researching your symptoms and that you'd like to be tested for celiac disease. Be aware that the blood tests may not be accurate and sometime even the EGD isn't. If you get a negative result I'd try the gluten-free diet anyhow. My blood tested negative but 90% of my symptoms have cleared up on the diet...especially my stomach symptoms. I'd say 99% of the GI related symptoms have cleared up. It's really amazing.

ne-mom Newbie
ne-mom
Posted
  • Author

Well, as it turns out I got very lucky at the doctor. As soon as I described what had been going on she said it sounded like it could be Celiac disease. She had me do the blood work in the lab today and is scheduling an endoscopy for me. I feel so relieved that I wasn't given the run around and she didn't brush me off. It feels very strange to be looking forward to a medical procedure, so to speak, but I just desperately want to find out what is wrong.

nixie-nox Newbie
nixie-nox
Posted

Well, as it turns out I got very lucky at the doctor. As soon as I described what had been going on she said it sounded like it could be Celiac disease. She had me do the blood work in the lab today and is scheduling an endoscopy for me. I feel so relieved that I wasn't given the run around and she didn't brush me off. It feels very strange to be looking forward to a medical procedure, so to speak, but I just desperately want to find out what is wrong.

I am glad to hear that your dr was open to it. Mine surprised me with it. I get random stomache pain.

Funny you mention the morning. Mine seems to be worse in the morning. But I was pregnant, lol.

Some mornings were so bad I would be curled up in the fetal position, like I had been kicked in the gut.

I always thought it was my meds.

As soon as I got up the nerve to bring it up to the doc(last time got me a barium enema, which I am still horrified from) he instantly brought up celiac.

Doctors are becoming more aware of it. it used to be little known. I did a celiac awareness walk. The only reaon I knew about it is because my step grandmother has it.

But the news is getting out, and you hear more about it. My mum said it is common enough in Italy that most restaurants have gluten free items on their menus.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

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    • catnapt
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      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

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