Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lectin Free.. Anyone Else?


Squirrelflight

Recommended Posts

Squirrelflight Rookie

Okay so after going gluten free I had an improvement in some symptoms and then others got worse. So after a little online research I decided to go lectin free as well. I'm in my first week of that and feel a huge difference although the diet feels very restrictive. I'm going to start challenging things soon and hopefully will add a few things back in.

Anyway.. are there any others here who are lectin free as well? I read that lectin is similar to gluten so a lot of poeple who react to gluten (which is a lectin group) will react to the other lectin families as well like the night shades, dairy or legumes.

Here is a link for a little more info if interested. Open Original Shared Link

Michelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

My hubby and I are doing our best to eliminate all lectins after reading your (or someone else's?) original post about lectins and after doing some online research. I was already soy free and nightshade free, and seem to have naturally gravitated (since going gluten free) to foods that do not contain lectins anyway, so it is not that difficult. Just meant avoiding all canola oil, cutting out peanut butter (a biggy for hubby) and reinforcing what had become a natural avoidance of legumes. I kept thinking I should be eating more legumes and kept finding reasons not to use them somehow :o , and now I think my subconscious was telling me I did not respond well to them. And here white bean salad used to be one of my favorite salads. Haven't made it in ages. And split pea soup was a favorite since it was most often gluten free.

Hubby has been fighting sinus congestion for a long time, even after he completed his series of shots for grass allergies, and since eliminating the lectins he says they are quite clear now. I had been once again having nighttime bloating and racing heart, and since cutting out lectins, going back on digestive enzymes and taking a Motilium at bedtime it has so far not recurred. Of course we don't know which (or of it's the combination) is helping, but these episodes were so distressing I am not willing to experiment :unsure:

I was surprised that I had never really heard of lectins before, but then I hadn't heard much about gluten either :lol:

  • 1 year later...
koz158 Apprentice

Has the introduction of Glucosimine helped anybody with symptoms? Ref: The Lectin Report paragraph 8 second sentance.

koz158 Apprentice

Pardon me getting a little mushy on all you guys, but I cannot express to all of you how encouraging it is to be able to find this information. My fianc

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.