Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergy Shots


missy'smom

Recommended Posts

missy'smom Collaborator

Our copay was recently doubled, which is one thing and fairly standard, but we have to pay a copay for shots too, even if a doctor is not seen so now we pay $20 copay per shot visit! He was getting them twice a week. We have cut back to once a week but it'll take all the longer to get to the maintainance dose. Kiddo's got a heavy allergy load so stopping them is not an option and because of the load, he has a long ways to go before he gets to maintainance dose. No appointment, no doctor seen, just a nurse in basically a closet piled with storage, not even an exam room. The sympathetic receptionist at the ped's office mentioned me giving the shots to him at home. That would save us alot of $. Anyone done this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



macocha Contributor

haven't done it but I would learn really quick if it cost me 20 bucks a pop to go in and not even see a doctor. good luck!

missy'smom Collaborator

It sounds appealing when you think of the savings! Not such a simple undertaking though. He gets three shots each time-two in one arm and one in the other, shots have to rotated each time-can't do the same one in the same arm twice in a row plus doses have to be adjusted each time I think. So careful records have to be kept and it has to be done very mindfully. If only I had a neighbor or friend who was a nurse...

Roda Rising Star

I originally had the same thing, $20 copay for any visits including my son's shots(he goes once a week for two shots). The receptionist suggested to me if I was to "self pay" they would give a discount(total charges were $25). Plus it saved them paperwork. I ended up doing that just for the allergy shots and paid $15/week instead of my $20 copay. It saved me $260/year. It might be worth it to talk to the office manager and see if you can negotiate a self pay. Since all that my insurance changed how it pays, so now I pay the $250 deductible then the insurance covers the rest at 80%. I have run all the numbers and the way it is now is cheeper over the course of the year. After I pay the deductible, I pay $4.40/allergy shot visit. I then submit my out of pocket expenses (deductible and what I pay after ins. pays) to my medical flexible spending account for reimbursement.

luvs2eat Collaborator

I did, years ago when I moved from NJ to FL and took my allergy prescription to a doctor and begged him to let me give them to myself.

I used to have to go once a week to the allergist's office... and sit for about an hour, waiting my turn, getting my shot, and then waiting the 20+ minutes to see if I was going to react. He wouldn't consider letting me take them at home. I was a nursing student at the time.

My FL doc gave me the serum, a 'scrip for the needles, and a 'scrip for an "Epi-pen" which I kept at all times in case I went into anaphylactic shock or something after taking the allergy shot.

I rotated both arms AND both thighs... my friend and neighbor, also a nurse, would give me the arm ones occasionally. It was great!

Like a diabetic learning to take their insulin... I don't see why not being a nurse would make it impossible. You could easily learn. Good luck getting your doctor to agree to it tho. He is getting that copay for a nurse to see you in a closet, after all.

Roda Rising Star

Dang. I feel your pain and frustration. My husband was recommended to have allergy testing and the doctor's office called the insurance to see what it pays. The receptionist called yesterday and told my husband what his benefits were. I called the insurance company, and low and behold my insurance has changed yet again as of Jan. 1st. It is pretty darn sad that I had to find out this way. I knew that my ins. rates were staying the same and some benefits were going to be paid differently, but never got any information on what ones. :angry: I sure do love the communication. I now have a $750 deductible and for the actual injection appointments after that it covers 80%. Unfortunatly his serum is now subject to the deductible also, before it was covered 100%. The copay for the allergist is now $50 and it will only pay 60% for the serum after deductible. Because of this my husband has canceled his allergy testing and said it was not worth it for both of them. He does manage his pretty well with otc meds. It still in the long run is better to go this route than to negotiate self pay since the serum itself is very expensive/vial. GRR..... I am going to see if I can find another allergist that the insurance will pay 80% after deductible and the lower copay. I am going to inquire about giving him his shots myself. I am certified BLS for healthcare providers in CPR and certainly know the signs of allergic reactions. At work I perform ct scans and routinly inject patients with iv contrast. I think I can handle two allergy shots a week. We'll see.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.