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Is This Really Celiac?

bethfuller

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bethfuller Newbie
bethfuller
Posted

From Prometheus Labs: January 2010

AGA IgG 16.5U/ml (<10 u/ml normal range)

AGA IgA 17.4U/ml (<5 u/ml)

TTG IgA 1.4U/ml (<4 u/ml)

EMA IgA negative

TOTAL IgA 577 mg/dl (44-441 normal)

HLA DQ2 and HLA DQ8 genes not detected.

Biopsies (endo and colonoscopy) were all negative. No damage at all.

The reason I looked for help was because I was having extreme uncontrollable diarrhea, cramping, loud stomach noises, floating stools. It started on an exact date June 13th, 2009.

I've been on a gluten free diet for three months now. I cut out the dairy and also found out I am somewhat allergic to eggs and peanuts. Thing is, I purposefully glutened myself (A LOT) yesterday to see what my reaction would be and had NONE at all, I mean nothing. When I eat dairy, I get cramps, bloating and diarrhea but eating gluten doesn't seem to effect me at all. It didn't before I was diagnosed either. I have never had any GI problems until last June 09'. Never been to the doctor for more than a sinus infection.

I am planning on meeting with my GI doctor again but he is clueless as to what Celiac disease is. All they gave me was a print out of 20 things that I should avoid because they have gluten in them. I just have been thinking that those numbers seem a bit weak to diagnose Celiac. I am so very happy to be eating better. I don't think I will go back to the way I ate before no matter what the outcome.

I just wanted to know if anyone else got this result....what to do now?

The diet only made me feel better when I cut out the eggs and dairy. For a month, I had no relief thinking that it was just going to take time but then no dairy-no symptoms.

Argh.

~Beth

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mbrookes Community Regular
mbrookes
Posted

That sure doesn't sound like celiac, especially the biopsies with no damage. Perhaps dairy is your only problem. Why not cut out all dairy and see what happens.

bethfuller Newbie
bethfuller
Posted
  • Author

I am doing so and feeling great!

I am getting a second look see at my test results. No matter, my diet change is a good thing!

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