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Newly Diagnosed? You Can Do This!


lbv6684

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lbv6684 Rookie

I know I don't have much experience but I did want to give some encouragement to anyone just starting this. When I was diagnosed 6 weeks ago with celiac, I felt a strange mix of relief and panic. I have been ill for a long time, so long I forgot what feeling well was about. I was so relieved to know that I wasn't imaging the symptoms I had (for most of my adult life!), and that they were directly related to something that I could control AND that it wasn't life threatening (because I had caught it and will deal with it). I was terrified because I love to feed people, oh and myself too, how was I supposed to do this now? After some introspection on this, I figure out that while I could cook and bake well, I never learned the science behind cooking. I didn't follow many recipes, just made things up. I have had to swallow my "chef" pride and allow someone else to teach me. In 6 weeks I have become so much more literate on this, its exciting to me. I am understanding how different flours work together, how liquids impact the flours, how to measure properly etc. I tried in the beginning to make elaborate recipes, but found simple was best and tasted good! I made vanilla cupcakes that were worthy of smiles and thumbs up from my family yesterday. The best part was that they were mixed up, baked and out of the oven in about 30 minutes then frosted with store bought frosting for ease. They were wonderful, and far less expensive than any I could purchase. I know that you have heard it before, but stay positive, if all you have to do is control your diet to feel well, and live a good life its not so bad! Be well!


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  • Posts

    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
    • kpf
      Thanks so much. This is what I thought but really wanted a second opinion. I appreciate this. 
    • xxnonamexx
      I have heard about numerous food sensitivity tests blood and the prick and how nothing is very reliable I think trial and error probably best bet.
    • trents
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    • trents
      The IGA TTG (aka, TTG-IGA) is the centerpiece of celiac disease blood antibody testing. A high value in this test indicates probable celiac disease, though there are other reasons (some other diseases, some medications and in some cases, even some non-gluten foods) that can cause it to be elevated. And it is not unusual at all for other celiac antibody tests to be normal when the TTG-IGA is high. Normally, when the TTG-IGA is elevated, the physician will order an upper GI with biopsy of the small bowel lining to check for the damage characteristic of celiac disease. The biopsy is then sent out for microscopic analysis. This is to confirm the results of the blood testing and is considered the gold standard diagnostic test. You should not begin a gluten free diet until the endoscopy/biopsy is complete. This is very important because otherwise the results will be invalidated.  This article on celiac disease blood antibody tests might be helpful to you while you are waiting for feedback from the physician:  
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