Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Learning To Cope In Wa State

verbiage

Recommended Posts

verbiage Newbie
verbiage
Posted

After months of constant pain and unanswered questions I have to say I have bittersweet feelings about my celiac disease diagnosis which just happened on March 16th. Having to switch my way of life from the "stuff-your-face with gluten goodness" attitude to actually having to make a conscious decision about what I put in and even ON my body is nothing short of overwhelming. Is it normal to get all teary-eyed over a cupcake?

So making a 360 degree change in lifestyle I guess I am looking for any words of wisdom or tips & tricks of the trade...or anything at all. So far I haven't really found any community support groups or ways to link up with other young adults with celiac disease but if you know of anything in Tacoma Washington (or surrounding area) it would be much appreciated. its just nice to have someone to talk to that can level with you on having to make such drastic changes.

Whitney

hahasdfk@hotmail.com

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac-mommy Collaborator
celiac-mommy
Posted

Hi Whitney!

I'm down in Vancouver, otherwise, I take you to coffee so we could chat! I understand what you're going through and I know you will get all the support you could possibly need here at this site! How old are you and if you're living at home, is your family supportive? I've rediscovered a love of baking over the last few years. I see it as a great and fun challenge to come up with amazing recipes to rival any gluten one. I make gluten free (and vegan!!) chocolate cupcakes that can kick any regular cupcake's arse :P

Do you have any other sensitivities or allergies?

Whatever you need, we're here for you!

  • 1 month later...
LovingLife7 Newbie
LovingLife7
Posted

After months of constant pain and unanswered questions I have to say I have bittersweet feelings about my celiac disease diagnosis which just happened on March 16th. Having to switch my way of life from the "stuff-your-face with gluten goodness" attitude to actually having to make a conscious decision about what I put in and even ON my body is nothing short of overwhelming. Is it normal to get all teary-eyed over a cupcake?

So making a 360 degree change in lifestyle I guess I am looking for any words of wisdom or tips & tricks of the trade...or anything at all. So far I haven't really found any community support groups or ways to link up with other young adults with celiac disease but if you know of anything in Tacoma Washington (or surrounding area) it would be much appreciated. its just nice to have someone to talk to that can level with you on having to make such drastic changes.

Whitney

hahasdfk@hotmail.com

Whitney,

Hi! I am in the same exact boat as you. I have gone years now with horrible stomach pain, nausea and unanswered questions and I live in Seattle :). How old are you/what school do you go to? I am a senior in high school but i will be going to SPU next year. I just got diagnosed correctly (finally!) with Celiac in January, so I am new to this too. It is really hard the first few months but I have to admit that it is getting easier and is just so worth it to feel GOOD for once. I would love to help you out with the few tips I have(me being a newby still) and chat more. It will take you a while to get used to not eating gluten, and mostly the biggest challenge for me is staying away from hidden gluten in foods that you would never expect. Such as the grilled chicken from QFC that i used to always eat, they inject it with wheat! How weird is that? Anyways I look forward to hearing back from you, everything will feel better soon :).

-Shannon

Generic Apprentice
Generic
Posted

I know this is the teen section, but I had to speak up. I used to live in Tacoma, so I know a few food places that might be helpful to you. I too was a teen celiac, I was diagnosed over 20 years ago, back then things really sucked!

Besides the normal places that have gluten-free menus. (outback, chevys, chillis) There is a place called Woody's on Dock street that has a gluten-free menu. Rumor has it that there is a place at the freight house square that carries gluten-free baked goods. Most Garlic Jim's pizza places have a gluten-free pizza (I know for sure there is one in Lakewood). Fred Meyers carries some gluten-free foods in their health food section. There is or used to be a store in Spanaway called the acorn pantry. They are a gluten-free store if they are still there. Marlene's Market has some gluten-free stuff as well and you might be able to find a support group thru them. If you can make a road trip to Mountlake Terrace (Just North of Seattle) there is a huge health food store called Manna Mills that is about 80% gluten free.

Oh and by the way Betty Crocker now has gluten-free brownies, chocolate chip cookies, and cake mixes. They are usually with the normal betty crocker stuff. Albertson and safeway tend to have them.

Generic Apprentice
Generic
Posted

I forgot there is also a place in Kent called Hailey's Bakery. They are 100% gluten-free baked goods.

Lycopene Rookie
Lycopene
Posted

I live sort of near you! I live in Kirkland. [: We could easily meet up for coffee some time if you'd like. Either that or just chat online. [:

But I've been diagnosed for nearly a year, I just haven't held to the diet until recently, so I definitely know what you're going through.

Oh, I am moving to Georgia soon, so... if you do want to meet up it'll have to be relatively soon. ]: I'll email you. [:

  • 1 month later...
zombietommie Newbie
zombietommie
Posted

I'm near Seattle, and I finally figured out the answers to all my pain in August!

More stuff has come up for me, however, more recently!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,788
    • Most Online (within 30 mins)
      7,748
    SClark
    Newest Member
    SClark
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Waterdance
      Diagnosed gluten allergy but not Celiac

      By Waterdance · Posted

      Thank you for saying that. That doctor diagnosed me with IBS with no follow-up so the relationship is already concluded. If I pursue diagnosis further I'll request someone else. 
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Hey everyone. Thanks again for your suggestions. I wanted to give an update and ask for some follow-up suggestions from you all.  So I did go through all of my food items and stopped eating things that were “gluten free” and switched over to the “certified gluten free” ones (the ones with the g symbol). I also stayed away from restaurants except once and there I ordered something raw vegan and gluten free hoping for the best. I also stayed away from oats and soy and dairy. I've also been increasing my vitamin B complex. I've been doing this for about 12 days and while I know that's not that long, I'm still getting sick. Sometimes having diarrhea. Sometimes getting headaches and having necklaces. Sometimes waking up feeling horrible brain fog. I did go to my GI doc and they did a blood test and found my TtG-IgA was in the negative range (and a lower number than I'd had before). I also had normal levels of CRP. My stool showed no elevation of calprotectin and no pathogens. My GI doc said the symptoms could be related to a gluten exposure or to IBS. I'm keeping a food diary to see if I can narrow down whats going on. I know I have good days and bad days and Im trying to isolate what makes a good day versus a bad day. Generally so far it looks like if it eat something super cautious like raw vegetables that I chopped myself into a salad and almonds, im fine but if I eat something more complex including, say, chicken and rice (even if packaged and certified gluten free or made by me with gluten free ingredients), it may not go so well. I may end up with either a headache, neck tension, brain fog, and/or diarrhea that day or the morning after. Any other thoughts or suggestions? I am planning to start tracking my foods again but I wanted to do it in more detail this time (maybe down to the ingredient level) so are there any common ingredients that celiacs have issues with that you all know of that I should track? I've got dairy, oats, soy, eggs, corn, peas, lentils on my “watch list”. Other things I should add? I'm hoping if I track for another two weeks I can maybe pin down some sensitivities. Appreciate the help and tips. Thank you so much!!
    • trents
      Diagnosed gluten allergy but not Celiac

      By trents · Posted

      "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis/ If your GI doc is operating on that piece of misinformation, I would start looking for a new GI doc because I wouldn't trust him/her in general. 
    • Waterdance
      Diagnosed gluten allergy but not Celiac

      By Waterdance · Posted

      Thank you so much for your informative reply. My GI doctor ruled out gluten celiac entirely because I didn't have skin rash. I had a histamine response to wheat and milk by scratch test by an allergist. I'm not always symptomatic but the older I get the worse it gets. I've found through trial and error that I can react to all grains. Buckwheat and corn included. I tolerate some rice but I wouldn't want to eat it every day. Potato is pretty good for me but I can't eat it every day either. I compromise with squash. I tolerate it well. The Best I feel is while fasting. When I'm in pain and discomfort it's easy to fast even long term, it helps. The problem I'm having is I'm great with my diet for 3-6 months then I start to cheat again. When I don't get immediate symptoms I get this foolish false security. I react then go back to my diet. Rinse and repeat. I suppose discipline is my real issue. I'm very tired of perusing a diagnosis. The constant gaslighting and dismissal is exhausting. Thanks for your suggestion of the autoimmune protocol. I will give it a try. Perhaps the guidelines will help me to navigate better.   Thanks again.
    • Scott Adams
      Kan-101

      By Scott Adams · Posted

      This isn't the first potential celiac disease treatment in the pipeline that failed. There have been others...
×
×
  • Create New...