Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Calcium


Wandering Hermit

Recommended Posts

Wandering Hermit Contributor

Well it has been 6.5 weeks of gluten-free for me, and I cannot say that I am seeing much difference yet in my overall health, with the exception that:

1) I have not had any of the stabbing abdominal pains that I used to have, and

2) I have not had any D since going gluten-free.

I know that it may take months to get feeling really well, so I am being patient....

I still have BMs that do not sem quite right - they seem solid enough but once in the water they sort of disintegrate - there also seems to be mucus too.

Anyway, I stiil get some mild gut cramps, plus my bones and muscles always seem sore, and I am still lightheaded and often lethargic.

Something I had been trying for the muscles aches in the past was calcium, and it seemed to help. My wife turned me on to it. She swears by it. Apparently she used to have unbearable menstrual cramps, but she found they disappeared altogehter if she took calcium. Also, when we were in SE Asia and frequently suffering from gut maladies, she was taking it and says it usually relieved the pains.

It sort of makes sense to me, as I know that Ca2+ ions are used by all muscle cells as part of the activation process. Moreover I have read about calcium being used for severe muscle cramps.

Anyway, for a few months before my celiac disease diagnosis, I started taking 500mg a day, and it had a significant effect on my cramps. I went from cramps about 1/4 days to cramps about 1/10 days. But since my celiac disease diagnosis, I stopped taking it, because I was unsure if my tablets were gluten-free.

I found some gluten-free caclium pills last night and I am going to try them again. Also, since I now realize that the celiac disease was impeding my calcium absorbtion, I can see how this could lead to even worse cramps from celiac disease - the gluten itself caused reactions and cramps, and damaged the villi, reducing caluicum uptake, further making cramps worse....etc....

So I am taking 1000mg a day now, which is the RDA. Obvioulsy I will get more from other foods, etc, but since my guts are damaged, and my bones probably are too, I think it makes sense to exceed the RDA a little, for now.

Anyone else have any experience with this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PreOptMegs Explorer

I am definately looking for a good gluten-free calcium supplement, especially since starting the specific carbohydrate diet, since it does not allow you to drink milk. It is a good idea to take the calcium, but like you said, who knows if it is gluten-free or not.

Lesliean Apprentice

Glad the calcium helps with the cramps. Muscle cramps can also be caused by potassium deficiency. The villi tips that are damaged by celiac disease are where calcium is metabolized. 50 to 100 % of celiac disease patients have significant bone loss (which they regain, in part at least, quickly as they heal). I take Citracil because it can be metabolized on an empty or full stomach. I take 2000 mg. a day. Space them out because only 500mg. can be utilized at a time.

The bowel habits can take quite a while to change to reliably normal. Upwards of a year in many people. I was improved immediately but 4 months into a gluten-free lifestyle and I am still improving with some of the symptoms.

My neck pain, back pain at a fracture site, and elbow pain have gone away completely. Different than yours...

Leslie

cdford Contributor

The longer you are gluten-free, the more likely it will be that you will see "normality" in you gut and the other areas where you are affected. I have seen the muscle, nerve, and bone damage get much better over the last two years along with the gut.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.