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Cd For Life?

jams

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jams Explorer
jams
Posted

I am wondering if someone can give me some insight on celiac disease.

I struggle with people not understanding that celiac disease is for life. I recently had my gallbladder out. I cannot even tell you how many people (not drs) tell me that I should now be cured!! It took a while to try to explain celiac disease to my friends/family and now I am starting all over again.

Does anyone have a way of explaining that celiac disease is for life? I also have people asking me if I will go into "remission". They figure since mine (at least symptoms) was brought on by pregnancy that it should go away after a while. I get so frustrated that I give up on an explaination. That is not good either. People need to understand what it is.

Any help would be greatly appreciated!!

Thanks!

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stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Yes, celiac disease is for life. There is no cure. I mean other than sticking to the diet.

A few days ago Kaiti explained very good to some of her friends, that she can't eat the pizza by puring something over it (i think it was cleaner or something) and then scraping it off. Just like her friends did with the cheese on the pizza. And then she offered them the scraped of pizza to eat. I found this quite funny. I think it's a good way of explaining this, because "normal" people can't eat cleaner for life :P , just like we can't have gluten. So this would be a good explanation. I always ask people, if they can have rat poison. I they say no, I say: "See, this is what gluten is to me."

tarnalberry Community Regular
tarnalberry
Posted

Have you tried explaining that it's genetic? Perhaps that will make it easier for them to understand that it's permanent.

KaitiUSA Enthusiast
KaitiUSA
Posted

As Stef said..I did a visual for my friends that seemed to work quite well. So if you talk until you are blue in the face and they don't get it then try a visual.

Let them know this is an autoimmune disorder and you were genetically predisposed to this. Let them know there is no cure and gluten will tear up your intestines and if you choose to ignore it then you knock yeard off your life and pose a threat to get serious illnesses.

pmrowley Newbie
pmrowley
Posted

The other thing you might want to try, is describing the exact nature of celiac disease.

Check out this topic; there's a very succinct description that another member uses to explain her condition (and now I do too!) With that description, people tend to realize that it's a serious condition, and that it doesn't just go away.

Open Original Shared Link

-Pat

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