Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Time To Start Scd?


taweavmo3

Recommended Posts

taweavmo3 Enthusiast

I have been gluten/dairy free for 2 years, along with my entire family. This past December, I took some high dose antibiotics for a dental infection. Since then, I just have not been the same. I seem to be unable to tolerate carbs or sugar. I have had extreme fatigue, heart palpitations, get dehydrated easily, and feel hungover most days.

This has been going on for 4 months now...I'll feel okay every now and then, but most days I have headaches, lethargy, stomach cramps, etc. I've tried taking some probiotics, but they make me too sick to function. Today I've reached my wits end after waking up again feeling like I've been out partying the night before. I made some homemade chicken stock this morning, and have been sipping on it all day. I do feel better....so as much as I'm dreading it, I think I may need to start the SCD.

Anyone have any similar circumstances? I'm afraid to start this diet, I'm already a stick and really can't afford to lose any weight. I'm just frustrated, and want to have my life back....I'm ready for a nap by 10am, which doesn't really work out to well with four young kids. Thanks!

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mochridhe Newbie

I have been gluten/dairy free for 2 years, along with my entire family. This past December, I took some high dose antibiotics for a dental infection. Since then, I just have not been the same. I seem to be unable to tolerate carbs or sugar. I have had extreme fatigue, heart palpitations, get dehydrated easily, and feel hungover most days.

This has been going on for 4 months now...I'll feel okay every now and then, but most days I have headaches, lethargy, stomach cramps, etc. I've tried taking some probiotics, but they make me too sick to function. Today I've reached my wits end after waking up again feeling like I've been out partying the night before. I made some homemade chicken stock this morning, and have been sipping on it all day. I do feel better....so as much as I'm dreading it, I think I may need to start the SCD.

Anyone have any similar circumstances? I'm afraid to start this diet, I'm already a stick and really can't afford to lose any weight. I'm just frustrated, and want to have my life back....I'm ready for a nap by 10am, which doesn't really work out to well with four young kids. Thanks!

Hi...I just wanted to make a few suggestions that I hope so much might help. I felt the same way in the past. I felt like I had been out drinkin' up a storm. First, be sure you aren't getting any gluten that could be hidden in something. Do you take vitamins? I was severely deficient in many because of the gluten issue. I feel a lot better now. Make sure all the vitamins are gluten free. I can only tell you what helped me. Every day I take 2 500mg Ester C (make sure it is ESTER C or it will kill your stomach), 1-2 50mg B6, 1-2 50 mg Zinc, 1 8000 I.U.vitamin A, 1 Super B-Complex by Nature Made (it doesn't contain much of B6), 1 5000mcg of Biotin, and 1 1000 I.U.of vitamin D. Where I put 1-2 tablets, you should probably take just 1 unless otherwise instructed to do so by a doctor. You may need to take calcium and vitamin E also. Some vitamin E is made from wheat, be sure it says gluten free. I felt like I had someone standing on my shoulders all the time. I felt just dead all the time and you got it, like you'd been out partying all night.

I really think you might be getting gluten from somewhere! I get those same symptoms when I accidentally ingest gluten. Please let me know if any of this helped. I had the exact problems so there must be something in common here. Bake some chicken , make some oven french fries and pick your favorite veggie. I bought some Trader Joe's Rice milk, but I haven't tried it yet. As far as I know I don't have the dairy problem. You need to eat!

What is this new diet, anyway? What antibiotic were you prescribed from the dentist? Are your dental issues all cleared up and over? I ask, because I found a correlation between dental extractions and strange body reactions (mine only) in the past.

Mochridhe

suszyQ Rookie

I have been gluten/dairy free for 2 years, along with my entire family. This past December, I took some high dose antibiotics for a dental infection. Since then, I just have not been the same. I seem to be unable to tolerate carbs or sugar. I have had extreme fatigue, heart palpitations, get dehydrated easily, and feel hungover most days.

This has been going on for 4 months now...I'll feel okay every now and then, but most days I have headaches, lethargy, stomach cramps, etc. I've tried taking some probiotics, but they make me too sick to function. Today I've reached my wits end after waking up again feeling like I've been out partying the night before. I made some homemade chicken stock this morning, and have been sipping on it all day. I do feel better....so as much as I'm dreading it, I think I may need to start the SCD.

Anyone have any similar circumstances? I'm afraid to start this diet, I'm already a stick and really can't afford to lose any weight. I'm just frustrated, and want to have my life back....I'm ready for a nap by 10am, which doesn't really work out to well with four young kids. Thanks!

This sounds exactly like me. I've been gluten free for 4 years and I'm almost positive that this is not a gluten reaction. My doctor did a bunch of blood work and told me everything was normal. When you can't function, everything is not normal! I think I have 2 problems: Adrenal fatigue and Overgrown Yeast (candida). There are special diets for both, which actually are quite similar. From what I read, the Yeast problem needs a good probiotic. I've tried several and they really make me not feel good -- extreme dizziness -- sick at my stomach -- and sometimes I feel like I can hardly breathe. I've lost 25 pounds from following these diets and I really don't want to lose anymore. What is the SCD?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    2. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    3. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    5. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,230
    • Most Online (within 30 mins)
      7,748

    DJD
    Newest Member
    DJD
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.