Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Time To Start Scd?


taweavmo3

Recommended Posts

taweavmo3 Enthusiast

I have been gluten/dairy free for 2 years, along with my entire family. This past December, I took some high dose antibiotics for a dental infection. Since then, I just have not been the same. I seem to be unable to tolerate carbs or sugar. I have had extreme fatigue, heart palpitations, get dehydrated easily, and feel hungover most days.

This has been going on for 4 months now...I'll feel okay every now and then, but most days I have headaches, lethargy, stomach cramps, etc. I've tried taking some probiotics, but they make me too sick to function. Today I've reached my wits end after waking up again feeling like I've been out partying the night before. I made some homemade chicken stock this morning, and have been sipping on it all day. I do feel better....so as much as I'm dreading it, I think I may need to start the SCD.

Anyone have any similar circumstances? I'm afraid to start this diet, I'm already a stick and really can't afford to lose any weight. I'm just frustrated, and want to have my life back....I'm ready for a nap by 10am, which doesn't really work out to well with four young kids. Thanks!

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mochridhe Newbie

I have been gluten/dairy free for 2 years, along with my entire family. This past December, I took some high dose antibiotics for a dental infection. Since then, I just have not been the same. I seem to be unable to tolerate carbs or sugar. I have had extreme fatigue, heart palpitations, get dehydrated easily, and feel hungover most days.

This has been going on for 4 months now...I'll feel okay every now and then, but most days I have headaches, lethargy, stomach cramps, etc. I've tried taking some probiotics, but they make me too sick to function. Today I've reached my wits end after waking up again feeling like I've been out partying the night before. I made some homemade chicken stock this morning, and have been sipping on it all day. I do feel better....so as much as I'm dreading it, I think I may need to start the SCD.

Anyone have any similar circumstances? I'm afraid to start this diet, I'm already a stick and really can't afford to lose any weight. I'm just frustrated, and want to have my life back....I'm ready for a nap by 10am, which doesn't really work out to well with four young kids. Thanks!

Hi...I just wanted to make a few suggestions that I hope so much might help. I felt the same way in the past. I felt like I had been out drinkin' up a storm. First, be sure you aren't getting any gluten that could be hidden in something. Do you take vitamins? I was severely deficient in many because of the gluten issue. I feel a lot better now. Make sure all the vitamins are gluten free. I can only tell you what helped me. Every day I take 2 500mg Ester C (make sure it is ESTER C or it will kill your stomach), 1-2 50mg B6, 1-2 50 mg Zinc, 1 8000 I.U.vitamin A, 1 Super B-Complex by Nature Made (it doesn't contain much of B6), 1 5000mcg of Biotin, and 1 1000 I.U.of vitamin D. Where I put 1-2 tablets, you should probably take just 1 unless otherwise instructed to do so by a doctor. You may need to take calcium and vitamin E also. Some vitamin E is made from wheat, be sure it says gluten free. I felt like I had someone standing on my shoulders all the time. I felt just dead all the time and you got it, like you'd been out partying all night.

I really think you might be getting gluten from somewhere! I get those same symptoms when I accidentally ingest gluten. Please let me know if any of this helped. I had the exact problems so there must be something in common here. Bake some chicken , make some oven french fries and pick your favorite veggie. I bought some Trader Joe's Rice milk, but I haven't tried it yet. As far as I know I don't have the dairy problem. You need to eat!

What is this new diet, anyway? What antibiotic were you prescribed from the dentist? Are your dental issues all cleared up and over? I ask, because I found a correlation between dental extractions and strange body reactions (mine only) in the past.

Mochridhe

suszyQ Rookie

I have been gluten/dairy free for 2 years, along with my entire family. This past December, I took some high dose antibiotics for a dental infection. Since then, I just have not been the same. I seem to be unable to tolerate carbs or sugar. I have had extreme fatigue, heart palpitations, get dehydrated easily, and feel hungover most days.

This has been going on for 4 months now...I'll feel okay every now and then, but most days I have headaches, lethargy, stomach cramps, etc. I've tried taking some probiotics, but they make me too sick to function. Today I've reached my wits end after waking up again feeling like I've been out partying the night before. I made some homemade chicken stock this morning, and have been sipping on it all day. I do feel better....so as much as I'm dreading it, I think I may need to start the SCD.

Anyone have any similar circumstances? I'm afraid to start this diet, I'm already a stick and really can't afford to lose any weight. I'm just frustrated, and want to have my life back....I'm ready for a nap by 10am, which doesn't really work out to well with four young kids. Thanks!

This sounds exactly like me. I've been gluten free for 4 years and I'm almost positive that this is not a gluten reaction. My doctor did a bunch of blood work and told me everything was normal. When you can't function, everything is not normal! I think I have 2 problems: Adrenal fatigue and Overgrown Yeast (candida). There are special diets for both, which actually are quite similar. From what I read, the Yeast problem needs a good probiotic. I've tried several and they really make me not feel good -- extreme dizziness -- sick at my stomach -- and sometimes I feel like I can hardly breathe. I've lost 25 pounds from following these diets and I really don't want to lose anymore. What is the SCD?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748

    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.