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Should I Even Bother? Allergy Testing Vs. Celiac Diagnosis


amsparky

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amsparky Newbie

Hi all!

I am a loooooong time lurker, but decided to go ahead and ask my question. Like many other newbies, I am debating whether or not to get a Celiac diagnosis. Here's the deal - I tested positive for wheat allergy (among many others), but the issue is that it was via progressive intradermal testing. When I was tested via the skin prick test, no reaction occurred. Apparently the intradermal is supposed to be less accurate, but it is sometimes more accurate when it is progressive...confusing, I know. All I know is that I was stuck so many times I wanted to cry and they couldn't even finish the test because I was reacting so much.

Despite the conflicting info, I went gluten-free and when I stick to it, I feel WAY better. Problem is, as we all know, it is a tough lifestyle to stick to.

I am just looking for other opinions - is it even worth the effort to see if it is Celiac's? The only reason I am still doubting is the differing allergy test results.

Thanks for any advice and have a great day!

Alana


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amsparky Newbie

Well, after speaking with my dr, she recommended going completely gluten-free to see if it eliminated all symptoms. So, back on the gluten-free train I go! It would be SO much easier if I weren't also allergic to dairy and yeast...

Jestgar Rising Star

Despite the conflicting info, I went gluten-free and when I stick to it, I feel WAY better.

I think this is your answer....

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    • AnnaNZ
      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    • The Logician
      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS.  I seriously doubt I have celiac but I appreciate your input and will let you know if I have a problem with wheat again. I’ve been eating things I’ve longed for for decades and have never felt better.
    • trents
      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
    • RMJ
      Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods go on the upper shelves so crumbs with gluten can’t fall onto them. Good luck!
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