Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update On My Situation

BrownEyedGirl

Recommended Posts

BrownEyedGirl Apprentice
BrownEyedGirl
Posted

I went to the dermatologist today and she told me I have a textbook case of DH. She didn't want to do a biopsy at this point due to the steroids I've been on for about a week. She said that given the fact that I've reacted to wheat gluten and dairy products in the past (had hives on and off for the past 4 years from eating wheat/milk products), I clearly have the signs of DH and I've made progress after starting on a gluten-free/CF diet. She said it appears that the steroids I was given have started working slowly since making the diet change, but she wanted to give me an extra boost to get rid of the lesions and rash. She gave me a topical cream to use on them about 2x a day for the next couple weeks. If/when it gets worse or re-occurs she said she wants to know about it. So basically, she diagnosed it without the testing. I guess that's ok ... I was really more concerned about finding relief, than just been given a diagnosis. I guess we'll see how well the cream works ... though the lesions are healing ... slowly. I've been feeling so much better since starting on the diet ... and it's only been 3 days. I'm also having very little IBS and anemia symptoms also.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

That is good news, Becky. She sounds pretty hep. Some posters report not needing any medication after getting well into the gluten free diet; with luck, you will be one of them. You may not have been seeking the diagnosis, but it is good to have, to remind yourself if you are ever tempted :rolleyes:

ravenwoodglass Mentor
ravenwoodglass
Posted

It sounds like you have a good derm. Welcome to the 'family'. You can now call yourself officially a celiac. Do be strict and do watch out for gluten in your topicals. You should start healing soon.

BrownEyedGirl Apprentice
BrownEyedGirl
Posted
  • Author

That is good news, Becky. She sounds pretty hep. Some posters report not needing any medication after getting well into the gluten free diet; with luck, you will be one of them. You may not have been seeking the diagnosis, but it is good to have, to remind yourself if you are ever tempted :rolleyes:

I think that I could heal without medication, but it would longer. I definitely feel like the medicine is speeding things along. Yesterday morning, it looked like it was a little better and now after 2 more steroid doses and with the topical, it looks a lot better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,146
    • Most Online (within 30 mins)
      7,748
    smithckr
    Newest Member
    smithckr
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thanks @Beverage for checking in!  I haven't changed the dogs' food yet.  I'm still working through some of the other issues that I need to remedy (transitioning to an anti-inflammatory diet, being sure to get only gluten-free certified items, and buying some new cookware for my kitchen).  Somewhere after that, I have on my list to try out the dogs on a new dog food, but I haven't gotten there yet.  In the meantime, though, I can definitely see that some of my worst days seem to follow when there's a possibility of gluten cross-contamination (I'm still working to cut waaay down on these instances) OR when I eat anything with dairy/ milk protein in it.  So I think I need to really get a better handle on my day-to-day eating habits to reduce all gluten cross-contamination into my food and also any dairy intake, and then at that point, I think I'll start moving over to the dog food thing.  
    • Scott Adams
      Need gluten-free restaurant recommendations in Germany and Salzburg Austria

      By Scott Adams · Posted

      Sounds like fun, and I was in Germany a few years ago so you might find these articles helpful:    
    • Scott Adams
      Refractory celiac disease

      By Scott Adams · Posted

      I just want to mention that we summarize the latest research on refractory celiac disease here: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/refractory-celiac-disease-collagenous-sprue/
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      I don't think you have the URL/site address correct, as there is nothing at that site.
    • lmurphyfoster
      Need gluten-free restaurant recommendations in Germany and Salzburg Austria

      By lmurphyfoster · Posted

      Hello All I am traveling to Germany in October and will be in Berlin, Rothenburg ODT , Salzburg, Fussen and Munich.  I am also driving the northern part of the romantic road with stops in some of the smaller towns along the way.  I would really appreciate any recommendations for gluten-free friendly places, restaurants and any gluten-free beer gardens.  Thanks in advance, Laura
×
×
  • Create New...