Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice


MommaBear09

Recommended Posts

MommaBear09 Newbie

Hi i'm a mom to a 20 month old boy. He is lactose intolerant and we have cut out all milk products. When we figured this out he was having chronic diarrhea, gas, bloated. For a little while the symptoms went away. Well now he has diarrhea off and on and all those symptoms. He literally wakes up in the morning looking skinny as can be and by the end of the day his stomach sticks out, and it is really noticeable. Does this sound like symptoms of Celiac's Disease? I don't have anyone on my side of the family with it and my fianc


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

It IS genetic, but at the same time, it's increasing in the population, so doctors aren't quite sure how that's working. However, if you have any family history of auto-immune disorders, specifically MS, diabetes, Hashimoto's disease, or hypothyroidism, that can put you in a higher risk category.

There's definitely a chance he could have it. And even if the test is negative, he could have gluten intolerance (which there is not test for, like most intolerances), so taking him off gluten after the test results are back, just to see, might not be a bad idea.

In my family, we had no family history of it, and then my father was diagnosed. We tested the rest of us - most who didn't even HAVE symptoms - and three out of the four of us turned out to be positive. If your son turns up positive, they really recommend you and his daddy get tested to. There's a 1 in 22 chance that you'll have it, even if you don't have symptoms.

My son, who tested negative but had swollen belly type symptoms, went off gluten because the whole family did, and he suddenly started improving as well, so we're pretty confident he was intolerant to gluten.

Good luck to you!

And if gluten isn't the answer? Other foods could cause this, intolerances especially. With a lot of food intolerances, it damages the gut so that a person becomes dairy intolerant too, so going off dairy helps for a while, but the food continues to cause damage. So...that might be worth looking into. There is only a test for lactose and fructose intolerance. The others have to be diagnosed by simply not eating the food, and keeping a journal of how your son's health improves or not. Also, some parasites can cause this, so if you've been out of the country, in an area with many people who have emigrated here, or eating at restaurants that serve foods with imported ingredients, that could be an issue, too.

Hi i'm a mom to a 20 month old boy. He is lactose intolerant and we have cut out all milk products. When we figured this out he was having chronic diarrhea, gas, bloated. For a little while the symptoms went away. Well now he has diarrhea off and on and all those symptoms. He literally wakes up in the morning looking skinny as can be and by the end of the day his stomach sticks out, and it is really noticeable. Does this sound like symptoms of Celiac's Disease? I don't have anyone on my side of the family with it and my fianc

MommaBear09 Newbie

It IS genetic, but at the same time, it's increasing in the population, so doctors aren't quite sure how that's working. However, if you have any family history of auto-immune disorders, specifically MS, diabetes, Hashimoto's disease, or hypothyroidism, that can put you in a higher risk category.

There's definitely a chance he could have it. And even if the test is negative, he could have gluten intolerance (which there is not test for, like most intolerances), so taking him off gluten after the test results are back, just to see, might not be a bad idea.

In my family, we had no family history of it, and then my father was diagnosed. We tested the rest of us - most who didn't even HAVE symptoms - and three out of the four of us turned out to be positive. If your son turns up positive, they really recommend you and his daddy get tested to. There's a 1 in 22 chance that you'll have it, even if you don't have symptoms.

My son, who tested negative but had swollen belly type symptoms, went off gluten because the whole family did, and he suddenly started improving as well, so we're pretty confident he was intolerant to gluten.

Good luck to you!

And if gluten isn't the answer? Other foods could cause this, intolerances especially. With a lot of food intolerances, it damages the gut so that a person becomes dairy intolerant too, so going off dairy helps for a while, but the food continues to cause damage. So...that might be worth looking into. There is only a test for lactose and fructose intolerance. The others have to be diagnosed by simply not eating the food, and keeping a journal of how your son's health improves or not. Also, some parasites can cause this, so if you've been out of the country, in an area with many people who have emigrated here, or eating at restaurants that serve foods with imported ingredients, that could be an issue, too.

Thank you so much for the information. He has an appointment monday to talk to the doctor about it.there is a family history of diabetes on both sides for him.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748

    Jean MacDonald
    Newest Member
    Jean MacDonald
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.