Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amend The FALCPA To Include Barley & Rye


les.retrouvailles

Recommended Posts

les.retrouvailles Newbie

Hi

Many food companies (ie: Safeway Brand) still don't disclose the presence of rye & barley in their food products. Only Congress has the authority to amend the Federal Food, Drug, and Cosmetic Act to expand the definition of a major food allergen to include rye and barely. I am urging all Celiac sufferers and their caregivers to send an email to their members of congress. It will only take 5 mn but it may make a huge difference for all of us...It will only take you 5mn. My letter is very generic so feel free to use it.

1. Find your members of Congress by clicking on your state on the map:

Open Original Shared Link

2. Then you enter your information & copy/paste the letter

To Whom It May Concern:

My child was diagnosed with Celiac disease, an inherited, autoimmune disease in which the lining of the small intestine is damaged from eating gluten and other proteins found in wheat, barley, and rye.

More than two million people in the United States, or about 1 in 133 people have the disease. According to a study conducted by the Celiac Disease Center at Columbia University along with CIGNA HealthCare, the annual mean medical cost of an undiagnosed Celiac patient is 8500$ per capita compared to 7100$ for Celiac patients on a strict gluten free diet. Thus an adherence to a gluten-free diet could significantly reduce the overall medical cost on the health care system.

However, living a gluten free diet is extremely challenging with the current FDA regulations on food labeling. The FALCPA (Food Allergen Labeling and Consumer Protection Act) requires that the eight most common allergens be declared in food products (eggs, milk, soy, peanuts, tree nuts, fish, shellfish and wheat). However, Celiac sufferers have to avoid rye & barley in addition to wheat.

I am requesting an amendment of the FALCPA to include barley and rye in the list of common allergens. This amendment will ensure that individuals, particularly parents of children with Celiac and others providing food to those children, can easily and accurately identify food products containing gluten ingredients.

I am aware that the FDA is scheduled to make a final rule on the use of the term

  • 8 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GKidd2 Newbie

Very important post. Let's all do our best to help each other out. I wrote all my legislators today. Thanks for the post.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,606
    • Most Online (within 30 mins)
      7,748

    Lostmamabird
    Newest Member
    Lostmamabird
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • amantelchi
      Your response on this matter is what I expect. You’ve had a similar episode years ago, but this one is lasting longer!
    • amantelchi
      I'd like to clarify: Is the pain you describe in the area just below your chest constant, or does it only appear when you start moving?
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.