Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Undiagnosed Son, 13 Years Old


AlsMom

Recommended Posts

AlsMom Newbie

Hello,

I am new to the forum and have a question pertaining to my 13 year old who has been feeling "gross" especially at night for some time now. We took him off gluten 2 weeks ago and he has been feeling much better. He felt rough for the first few days however and had a recurrence last weekend when he had a bowl of ice cream before bed. Yesterday (being Friday and just before the weekend)he asked if he could buy some fries at the school cafeteria even though he knew that donuts had been fried in the same oil a couple of weeks before. He figured that it would be a good food (his favorite) to "experiment" with. Last night was rough again as he couldn't sleep and felt gross (although not as awful as before) again (stomach hurt and just overall yucky...and whiny!).

Is it typical for these symptoms to show up at night? Why does he not feel gross until bedtime?? He also has a mild form of tourette's and some anxiety along with it and sometimes I wonder if that is why he is up at night (he feels "safer" around me when he feels gross.....he is vomit phobic!)

Any help would be appreciated!

Al's mom


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

I still have digestive discomfort at night sometmes-If I eat dinner early enough-not too close to bed time-4 hrs is better, and don't snack after dinner and avoid all the foods that irritate my system then I do much better. Otherwise things seem to sit in my GI track all night and I have discomfort, tension and loose stools in the a.m. I am very strictly gluten-free and have been for years. It's been a very long times since I got even just cross-contamination so my evening digestive discomfort is now due to other things-functional problems I would guess-at the very least some things are more difficult to digest, and now I know inflamation from food allergies and intolerances can contribute to my problems.

ocdsgirl Newbie

When I used to eat ice cream, I always had trouble sleeping if I ate it late. I get that "restless leg" feeling, but all over. I know if you mess around with going on and off gluten, it can screw up any medical testing, if you do decide to go that route. I think I did that to myself. I have an 11 yr. old son that is having some issues right now, so I know how you feel. I hope your son gets some resolution soon. It's frustrating.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,933
    • Most Online (within 30 mins)
      7,748

    Kazwal
    Newest Member
    Kazwal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.