Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Hives Are So Bad


blondebombshell

Recommended Posts

blondebombshell Collaborator

this was this morning. now they are red, and look like little bumps that i picked open.

DSC06959.webpDSC06951.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I do not have personal experience with DH; hubby has it, and from his and the other pics I have seen, this does not look like DH. Does it leave scars ? Does it turn purple? Does it form pustules that break open? These are the general characteristics of DH. Probably not exclusively, but generally.

Kate S. Newbie

I'm so sorry . . . that looks very painful!

I have DH, my mom has DH, my sister has DH, and my brother has DH . . . and I have to tell you, your rash looks EXACTLY like my rashes. I showed my mom your pictures to verify, and she thinks so too.

I can usually feel my rashes coming before they show (a painful pricking sensation), and then after they appear, they itch terribly. Iodine and dry skin makes the itching much worse. Although Benadryl doesn't make them go away, it does help with the itching.

Interestingly, those who have DH may or may not have damage to their small intestine, so you can still have DH, even though your endoscopy came back negative for Celiac.

They diagnose DH by taking a biopsy of skin right next to the blisters (not the blisters themselves); however, the results of your test may be compromised if you are already on a gluten-free diet.

I know how dreadful these rashes can be: Last summer, my entire body was covered in rashes just like yours for three whole months before I was diagnosed with DH (before that, I had patches on and off for years).

I hope you feel better soon!

c.moriel Rookie

Your pictures look exactly like my skin used to look, back before it spread to 90% of my body. 10 years ago it was just starting and would come and go. I had dr and dermatologists tell me it was everything from eczema/psorasis to wringworm. Of course nothing helped. After being diagnosed with celiac last month and going gluten-free, i've watched my skin change slowly. One thing I've learned that may help you is that for some people with dh, sunlight can help relieve some of their dh symptoms. Be careful, though. Some people don't respond well to light therapy.

  • 2 weeks later...
Glamour Explorer

I have some areas that look just like that. I feel prickly burning sensation before the itch begins too. That is how I know it is not a scratch first then itch syndrome that the doctors try to convince you of.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,583
    • Most Online (within 30 mins)
      7,748

    Caleb.rice
    Newest Member
    Caleb.rice
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.