Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Lactose Intolerance Help!


Ajsmommy0508

Recommended Posts

Ajsmommy0508 Newbie

I put my 2 year old son on a gluten free diet in February (he was 21 months old) after his blood test despite it being negative. It has completely eliminated his Celiac symptoms so his doctor diagnosed him as a Celiac this past week. I'm very overwhelmed with feeding him. Not only can he not have gluten but he suffers from Lactose intolerance as well. He has been Lactose intolerant since birth. He also does not like meat of any kind. Are there any suggestions on what I can feed him to help him gain weight? I read labels constantly but am having a hard time finding good protein sources for him. Someone suggested I try Whey protein but he can't have it because it is a milk bi-product. This whole process has become very overwhelming, not to mention very expensive. I have had to apply for food assistance because of it. In the last year he has gained around 1 pound but has grown about 4 inches. I'm becoming concerned about his weight gain but his doctor has given me no suggestions what so ever. He loves fruits, veggies, brown rice, peanut butter and corn pasta but that is pretty much the extent of his diet.

Any advice would be greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knittingmonkey Newbie

I have celiac disease, been eating gluten-free since April 30. I am also lactose intolerant

lucia Enthusiast

I put my 2 year old son on a gluten free diet in February (he was 21 months old) after his blood test despite it being negative. It has completely eliminated his Celiac symptoms so his doctor diagnosed him as a Celiac this past week. I'm very overwhelmed with feeding him. Not only can he not have gluten but he suffers from Lactose intolerance as well. He has been Lactose intolerant since birth. He also does not like meat of any kind. Are there any suggestions on what I can feed him to help him gain weight? I read labels constantly but am having a hard time finding good protein sources for him. Someone suggested I try Whey protein but he can't have it because it is a milk bi-product. This whole process has become very overwhelming, not to mention very expensive. I have had to apply for food assistance because of it. In the last year he has gained around 1 pound but has grown about 4 inches. I'm becoming concerned about his weight gain but his doctor has given me no suggestions what so ever. He loves fruits, veggies, brown rice, peanut butter and corn pasta but that is pretty much the extent of his diet.

Any advice would be greatly appreciated.

Is that your son, in your avatar? He's so cute!

Some good (and cheap) options are: eggs (try them boiled) and beans (lentils, chick peas, etc. - you could try making them into a spread, like hummus). Other good options are nuts and seeds (sunflower, pumpkin, etc.). All of these foods are packed with protein.

Another option is soy, but be careful because not everyone can tolerate it. You can give him soy milk, tofu, and soy-based products like burgers and "tofu" dogs. If you can find it, tempeh is a fermented version of soy which is packed with protein and easier to digest due to a fermentation process.

If you want to supplement his diet, you can find protein powders developed for vegetarians that use soy, rice, pea, and even hemp as a base. You just blend them with juice to make a shake.

One more suggestion, if you haven't tried it: you could introduce him to fish. It sounds like he has strong preferences so he may have already passed on that, but you didn't mention fish at all.

Glad you were able to get some assistance. It *is* overwhelming, and I just have to take care of myself.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.