Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Celiac Disease?


polkflguy

Recommended Posts

polkflguy Newbie

Ok first let me start out by saying I know I should and plan to see a doctor when I can afford it with that said I need to ask if anyone thinks this is possibly celiac disease.

My very first symptom was a burning in my stomach (left side) and heartburn, I was put on a PPI and diagnosed with GERD.

The ppi does help the burning and heartburn however recently as in about Nov of 2009 I started experiencing many symptoms and by researching found out about celiac disease.

The main symptoms that really bothered me at this time was gas and bloating and constant stomach noise. Now I tend to have diarrhea a lot and when I have bouts of diarrhea I usually get tingling in my hands and strange intermittent buzzing in my feet approx 3-6 seconds apart.

After finding out about celiac disease and having an extremely bad episode with pizza I decided to try a gluten free diet for 2 weeks. I felt great I only ate fresh fruit, vegetables, and meat for my meals and I felt 100% better no doubt about it!!

Anyway after two weeks I decided to grab a subway flat bread sandwich to see what reaction I may have if any. Within 1 hour I was in the restroom in misery and felt bad for a couple days after with tingling / buzzing. The best way I can describe it was it felt like food poisoning WITHOUT nausea and vomiting. Make no mistake this was not food poisoning this would happen to me right now if I was to go out and eat a pizza at Papa John's or ANYTHING from subway.

Symptoms are

Gas, bloating, constant rumbling

Heartburn

Tingling in fingers

Buzzing in feet

Headaches

Joint pain (right ankle right hip/back)

Chronic diarrhea until I alter my diet to high protein, fruits and veggies

At one time before my stomach trouble I developed this terrible burning blistering rash on my lower back the right side at the time I was terrified that I may have herpes or something, this rash came about after a long night of drinking "beer" but I never thought about the possible connections and later my father had the same problem after a night of beer in almost the exact same location I had it. He has no other symptoms that I know of.

Another interesting fact is that my little brother who lives 1200 miles away from me has been experiencing similar symptoms as mine for well over a year I know celiac disease is genetic so those two things also raise suspicions.

I am starting to piece together a puzzle and I believe I may be getting close to the answer.

I have never had problems with wheat until recently I used to eat nothing but wheat bread, my question is could this be celiac disease?

Thanks in advance for your responses :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yes it certainly could be. What you did was a gluten challenge. You dropped gluten and felt better then ate gluten and saw your symptoms return. You do need to be on a full gluten diet for testing. So if you want a doctor to confirm what your body has already told you get back on gluten. You should also encourage your family members to get tested. The rash sounds much like DH, or the skin form of celiac. A biopsy can be done if you have an active lesion but it needs to be done by a derm who knows how to do when looking for DH. The biopsy needs to be taken from the area next to the rash not the rash itself. A diagnosis of DH is a diagnosis of celiac even if no other symptoms are present. You would not have to go back on gluten long term for testing for DH, only long enough to produce active lesions. Also if your Dad or another family member have an active rash let them know about DH and testing. Celiac is very strongly genetic and with your response to the diet it is likely that it is their issue also.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      27

      My journey is it gluten or fiber?

    2. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.