Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Celiac Disease?


polkflguy

Recommended Posts

polkflguy Newbie

Ok first let me start out by saying I know I should and plan to see a doctor when I can afford it with that said I need to ask if anyone thinks this is possibly celiac disease.

My very first symptom was a burning in my stomach (left side) and heartburn, I was put on a PPI and diagnosed with GERD.

The ppi does help the burning and heartburn however recently as in about Nov of 2009 I started experiencing many symptoms and by researching found out about celiac disease.

The main symptoms that really bothered me at this time was gas and bloating and constant stomach noise. Now I tend to have diarrhea a lot and when I have bouts of diarrhea I usually get tingling in my hands and strange intermittent buzzing in my feet approx 3-6 seconds apart.

After finding out about celiac disease and having an extremely bad episode with pizza I decided to try a gluten free diet for 2 weeks. I felt great I only ate fresh fruit, vegetables, and meat for my meals and I felt 100% better no doubt about it!!

Anyway after two weeks I decided to grab a subway flat bread sandwich to see what reaction I may have if any. Within 1 hour I was in the restroom in misery and felt bad for a couple days after with tingling / buzzing. The best way I can describe it was it felt like food poisoning WITHOUT nausea and vomiting. Make no mistake this was not food poisoning this would happen to me right now if I was to go out and eat a pizza at Papa John's or ANYTHING from subway.

Symptoms are

Gas, bloating, constant rumbling

Heartburn

Tingling in fingers

Buzzing in feet

Headaches

Joint pain (right ankle right hip/back)

Chronic diarrhea until I alter my diet to high protein, fruits and veggies

At one time before my stomach trouble I developed this terrible burning blistering rash on my lower back the right side at the time I was terrified that I may have herpes or something, this rash came about after a long night of drinking "beer" but I never thought about the possible connections and later my father had the same problem after a night of beer in almost the exact same location I had it. He has no other symptoms that I know of.

Another interesting fact is that my little brother who lives 1200 miles away from me has been experiencing similar symptoms as mine for well over a year I know celiac disease is genetic so those two things also raise suspicions.

I am starting to piece together a puzzle and I believe I may be getting close to the answer.

I have never had problems with wheat until recently I used to eat nothing but wheat bread, my question is could this be celiac disease?

Thanks in advance for your responses :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yes it certainly could be. What you did was a gluten challenge. You dropped gluten and felt better then ate gluten and saw your symptoms return. You do need to be on a full gluten diet for testing. So if you want a doctor to confirm what your body has already told you get back on gluten. You should also encourage your family members to get tested. The rash sounds much like DH, or the skin form of celiac. A biopsy can be done if you have an active lesion but it needs to be done by a derm who knows how to do when looking for DH. The biopsy needs to be taken from the area next to the rash not the rash itself. A diagnosis of DH is a diagnosis of celiac even if no other symptoms are present. You would not have to go back on gluten long term for testing for DH, only long enough to produce active lesions. Also if your Dad or another family member have an active rash let them know about DH and testing. Celiac is very strongly genetic and with your response to the diet it is likely that it is their issue also.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      2

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. - Scott Adams replied to Jmartes71's topic in Doctors
      7

      Second chance

    3. - Russ H replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Concerning GP advice

    4. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      2

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    5. - Jmartes71 replied to Jmartes71's topic in Doctors
      7

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,645
    • Most Online (within 30 mins)
      7,748

    Rosannerosannadanna
    Newest Member
    Rosannerosannadanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.