Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Celiac Disease?


polkflguy

Recommended Posts

polkflguy Newbie

Ok first let me start out by saying I know I should and plan to see a doctor when I can afford it with that said I need to ask if anyone thinks this is possibly celiac disease.

My very first symptom was a burning in my stomach (left side) and heartburn, I was put on a PPI and diagnosed with GERD.

The ppi does help the burning and heartburn however recently as in about Nov of 2009 I started experiencing many symptoms and by researching found out about celiac disease.

The main symptoms that really bothered me at this time was gas and bloating and constant stomach noise. Now I tend to have diarrhea a lot and when I have bouts of diarrhea I usually get tingling in my hands and strange intermittent buzzing in my feet approx 3-6 seconds apart.

After finding out about celiac disease and having an extremely bad episode with pizza I decided to try a gluten free diet for 2 weeks. I felt great I only ate fresh fruit, vegetables, and meat for my meals and I felt 100% better no doubt about it!!

Anyway after two weeks I decided to grab a subway flat bread sandwich to see what reaction I may have if any. Within 1 hour I was in the restroom in misery and felt bad for a couple days after with tingling / buzzing. The best way I can describe it was it felt like food poisoning WITHOUT nausea and vomiting. Make no mistake this was not food poisoning this would happen to me right now if I was to go out and eat a pizza at Papa John's or ANYTHING from subway.

Symptoms are

Gas, bloating, constant rumbling

Heartburn

Tingling in fingers

Buzzing in feet

Headaches

Joint pain (right ankle right hip/back)

Chronic diarrhea until I alter my diet to high protein, fruits and veggies

At one time before my stomach trouble I developed this terrible burning blistering rash on my lower back the right side at the time I was terrified that I may have herpes or something, this rash came about after a long night of drinking "beer" but I never thought about the possible connections and later my father had the same problem after a night of beer in almost the exact same location I had it. He has no other symptoms that I know of.

Another interesting fact is that my little brother who lives 1200 miles away from me has been experiencing similar symptoms as mine for well over a year I know celiac disease is genetic so those two things also raise suspicions.

I am starting to piece together a puzzle and I believe I may be getting close to the answer.

I have never had problems with wheat until recently I used to eat nothing but wheat bread, my question is could this be celiac disease?

Thanks in advance for your responses :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yes it certainly could be. What you did was a gluten challenge. You dropped gluten and felt better then ate gluten and saw your symptoms return. You do need to be on a full gluten diet for testing. So if you want a doctor to confirm what your body has already told you get back on gluten. You should also encourage your family members to get tested. The rash sounds much like DH, or the skin form of celiac. A biopsy can be done if you have an active lesion but it needs to be done by a derm who knows how to do when looking for DH. The biopsy needs to be taken from the area next to the rash not the rash itself. A diagnosis of DH is a diagnosis of celiac even if no other symptoms are present. You would not have to go back on gluten long term for testing for DH, only long enough to produce active lesions. Also if your Dad or another family member have an active rash let them know about DH and testing. Celiac is very strongly genetic and with your response to the diet it is likely that it is their issue also.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,061
    • Most Online (within 30 mins)
      7,748

    Ellen Gnassi
    Newest Member
    Ellen Gnassi
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.