Celiac Home Test

[tehjrow]

So I got my Celiac Home test two weeks ago. Since then I've been eating gluten everyday to prepare for the test. Since I've been miserably sick the past two weeks I think i'm ready to take it tonight.

Has anyone else used one of these?

Open Original Shared Link

[ravenwoodglass]

How long were you gluten free before you started your challenge? It seems your body is giving you the answer since you have been so ill on the challenge. I didn't see any notes on the link that mentioned how long you have to challenge if you have been gluten free before you order the test. I could have missed it though. However with conventional blood tests and endos the time frame for a challenge is about 3 months.

[tehjrow]

I was only gluten free for 1 week so i'm still not sure it's celiac. I have a DR appt in a month.

[Skylark]

I was only gluten free for 1 week so i'm still not sure it's celiac. I have a DR appt in a month.

Antibodies don't go away in only a week gluten-free. You should get a correct result with the test since you're back on wheat.

[coffeetime]

If your results are negative you might still want to do conventional testing. I ordered three of the kits to test my children with. Sadly I did not read the website well enough and didn't realize at the time that the test only looked at one marker.I found I was positive (through a celiac panel at my doctors office) after my brother was diagnosised and wanted to screen them without effecting their insurance options down the road. I wish there was a lab you could just go to and say my name is Micky Mouse, test me and release that information to me only.

So I got my Celiac Home test two weeks ago. Since then I've been eating gluten everyday to prepare for the test. Since I've been miserably sick the past two weeks I think i'm ready to take it tonight.

Has anyone else used one of these?

Open Original Shared Link

[tehjrow]

It did test negative last night. Still have a DR appt in a month though. I've been dealing with this for almost 30 years, it's time to know for sure.

[ravenwoodglass]

It did test negative last night. Still have a DR appt in a month though. I've been dealing with this for almost 30 years, it's time to know for sure.

Do be sure to stay on the gluten until all your testing is finished. As soon as the tests are done you can start on a dietary trial. You don't need to wait for the results.

[nora-n]

We have a celiac home test here, and it is the IgA type ttg test.

So if the total IgA is low, it will be negative.

Someone on the forum in our country tested slightly positive (with lots of symptoms) and the hospital test was negative, so we know it is a bit more sensitive than the hospital test (different cutoffs probably)

The producer of the test answered that weakly positive still means positive.

One needs to consume a lot of gluten to test positive on the blood tests, the latest recommendation I have seen is at least 0,5 grams gluten per kg, which is 35 grams for someone weighing 70 kg, and that is a lot of slices of bread and pizza, and that is for at least six weeks, better three to six months.

The ttg test measures something that is made when lots of tissue is destroyed, you need tissue damage, and the run this forst so they have some kind of clue of who to biopsy. The gold standard test is a positive biopsy with damage to the villi, and some years ago they only diagosed them with lots of villi damage, or total loss of villi.

Still, 20% of those with total villous trophy hav negative blood tests, and half of those with patchy damage have negative blood tests.

[hercules25]

Does this mean anything for celica? Or is it only for Chrons? I have read it indicates either or???

Test done by LabCorp

Saccharomyces Cerevisiae, IgG 34.9 (Positive over 25)

Saccharomyces Cerevisiae, IgA 48.5 (Positive over 25)

[Skylark]

Still, 20% of those with total villous trophy hav negative blood tests, and half of those with patchy damage have negative blood tests.

Wow! Do you happen to have the link for a reference to those numbers? Not doubting you at all, just really curious/interested.

[hercules25]

Wow! Do you happen to have the link for a reference to those numbers? Not doubting you at all, just really curious/interested.

Saccharomycas cerevisiae, IgG 34.9

Saccharomycas cerevisiae. IgA 48.5

Negative <20.0

Equicoval 20.1 - 24.9

Positive >or = 25.00

[nora-n]

Skylark, about the references about negative blood tests, I have seen it several places, amongst them in one of the articles in The Lancet online full version that spelled it out.

Here at celaic.com there was an article where some scientists wanted to check how the celiac blood tests performed in real life. They split up blood samples from biopsy diagnosed celiacs and sent them to seveal commercial labs, and the best ones caught 80% of them, and the worst caught half of them.

And, probably those that only caught half are g´regarded to be better because they find fewer false positives....all in all, everyting is about NOT getting any false positives, to the expense of missing many, maybe half, of the celiacs.

I will have to find that one and bookmark it....but it was here on the main page. Anyone have the link?

Added: surfing The Lancet now, and there is a lot about gluten and neurology recently, interesting.

(We have free access with norwegian IP adresses)

Here is one that says 20%: Coeliac disease

The Lancet, Volume 362, Issue 9381, 2 August 2003, Pages 383-391

Peter HR Green, Bana Jabri

interesting about cutoffs for the tests:

Occupational flour exposure and screening for coeliac disease

The Lancet, Volume 346, Issue 8966, 1 July 1995, Pages 57-58

M.N. Kolopp-Sarda, M.C. Béné, B. Gobert, N. Massin, G.C. Faure

[Skylark]

Thanks, Nora. I'll check them out. I have access to Lancet.

[tehjrow]

Upper endoscopy results came back, i'm positive.

[Skylark]

Welcome to the gluten-free club. I hope whatever nagging health problems that got you looking for the diagnosis go away soon!