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Celiac Disease And Weight Loss

mrsvicky

Do you have weight loss issues too?  

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mrsvicky Newbie
mrsvicky
Posted

I was diagnosed with celiac disease about 4 months ago after suffering with it for almost 3 years with no answers from any of the Dr's I seen. Finally went to Mayo clinic in Mn and got some answers and now that I have got on the gluten free diet I am only having maybe 1 or 2 attacks a month but Im still losing weight like crazy. Is this pretty common with the disease or something I need to be contacting my Dr about? For example: I have lost a pound and a half just since last night and I will go a week or two not losing anything and then bam I have lost 10lbs in 3 days. I weigh every morning first thing so I can keep track of my weight because it really bothers me how fast its coming off and I like to know exactly whats going on with my weight so I can tell the Dr if needed. Also I eat all the time so its not that I am not getting enough to eat. I am also not extremly active. I have 3 kids who are 4, 6, and 1 that I have to chase around but other then that I dont play any sports or do any regular exercise mostly cause I am scared it will just speed up the weight loss more. So what do you think is this normal or something else to be looked into? TIA

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jerseyangel Proficient
jerseyangel
Posted

I was diagnosed with celiac disease about 4 months ago after suffering with it for almost 3 years with no answers from any of the Dr's I seen. Finally went to Mayo clinic in Mn and got some answers and now that I have got on the gluten free diet I am only having maybe 1 or 2 attacks a month but Im still losing weight like crazy. Is this pretty common with the disease or something I need to be contacting my Dr about? For example: I have lost a pound and a half just since last night and I will go a week or two not losing anything and then bam I have lost 10lbs in 3 days. I weigh every morning first thing so I can keep track of my weight because it really bothers me how fast its coming off and I like to know exactly whats going on with my weight so I can tell the Dr if needed. Also I eat all the time so its not that I am not getting enough to eat. I am also not extremly active. I have 3 kids who are 4, 6, and 1 that I have to chase around but other then that I dont play any sports or do any regular exercise mostly cause I am scared it will just speed up the weight loss more. So what do you think is this normal or something else to be looked into? TIA

Hi and welcome! It can take time to feel better and begin to absorb your foods correctly. Do you eat a fairly balanced diet? 10 pounds in 3 days is something that I would definitely ask my doctor about.

chasbari Apprentice
chasbari
Posted

Lost scary weight very fast when I went gluten-free and then even more drastic when I went paleo.. the thing is the weight loss was body fat as I was gaining considerable strength back during that time. I lost 40 pounds in the first three months or so and most felt I didn't have any margin for weight loss in the first place. I knew differently though. I have never felt healthier, even though I still have endurance and recovery issues when I don't get enough protein. The body is busy healing and operating so the calories you need have to do double duty and if you have considerable gut damage you need to eat nutrients that the body can readily assimilate... simple foods as natural as can be. I found I couldn't handle raw veggies at first but now I prefer them as my gut can handle it. I am snacking on cauliflower and carrots presently. If I keep the protein intake high my appetite settles down. I thought I would pour on the raw fruits for a while but encountered way too many problems with bloating and discomfort. When I cut back and went with fruits that I don't consume the peel or rind... especially apples, strawberries and oranges.. (I would have a waxy residue chronically on my hand from peeling oranges and wondered if there was a gluten issue with that) sticking with bananas and fresh pineapple.. things settled down considerably. I took a trip to NYC and thought I had packed enough food for my two days.. lost ten pounds on that trip and am still trying to gain it back, so I sympathize with you.

mareahf Apprentice
mareahf
Posted

I was diagnosed with celiac disease about 4 months ago after suffering with it for almost 3 years with no answers from any of the Dr's I seen. Finally went to Mayo clinic in Mn and got some answers and now that I have got on the gluten free diet I am only having maybe 1 or 2 attacks a month but Im still losing weight like crazy. Is this pretty common with the disease or something I need to be contacting my Dr about? For example: I have lost a pound and a half just since last night and I will go a week or two not losing anything and then bam I have lost 10lbs in 3 days. I weigh every morning first thing so I can keep track of my weight because it really bothers me how fast its coming off and I like to know exactly whats going on with my weight so I can tell the Dr if needed. Also I eat all the time so its not that I am not getting enough to eat. I am also not extremly active. I have 3 kids who are 4, 6, and 1 that I have to chase around but other then that I dont play any sports or do any regular exercise mostly cause I am scared it will just speed up the weight loss more. So what do you think is this normal or something else to be looked into? TIA

Yes, I lose weight quickly too when I accidently eat gluten. Normally when I get sick I will lose around 5 lbs and I am skinny already. I find it very dishearting because I feel like I am wasting away. But when I am healthy on my strick gluten-free diet my weight slowly comes back. Your body is not absorbing what it needs so it takes it from the reserve. I would see your doctor about the rapid weight loss, maybe they can give you vitamins so at least you get some nutrients. Hang in there and stick to your diet.

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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