Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac?

hercules25

Recommended Posts

hercules25 Apprentice
hercules25
Posted

I have been suffering for about 13 yrs now gastric and multiple other symptoms. My blood work is usually normal. Recently My Saccharomyces cerevisiae IgG came back 34.9 (above 25 is positive) and IgA 48.5. I am also positive for eosinophil's. My gastro diagnosed me with Chrons cause of the IgG and IgA but is confused cause I am positive for Eosinophil (which is an allergy) I have been Entocort for 2 months. It worked for a month and now I am sick again. My WBC is always normal, dont run a fever, rarely diarrhea, mostly constipation, never vomit, have vision problems, and so on. My stomach is bubbling all the time. Could this be Celiac and not Chron's?? What should I do next. Had all test including the capsule camera that never left my stomach for 8 hours so no luck with that. All other test come back negative beside minor inflammation where small intestine and large meet. (1 out of 5 colonoscopies reveled that). MRI of brain Neg. CT Scan and MRI of abdom neg. What next?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Has your doctor run a celiac panel?

There are people with gluten intolerance who do not have positive tests for celiac disease. Also going off gluten seems to help some people with other bowel problems. There is also a gluten-free, lactose-free diet called the "Specific Carbohydrate Diet" (SCD) that some people around here swear by. Once you have the celiac testing done, you can try either gluten-free or SCD and see if it helps.

ravenwoodglass Mentor
ravenwoodglass
Posted

You could also have both celiac and chrons. I would do as Skylark advised and try the gluten-free diet after you are done with celiac testing. You don't need to wait for the results as false negatives on celiac testing are unfortunately common. Being gluten free will only effect the testing for celiac. If there are other issues going on they can still be tested for.

hercules25 Apprentice
hercules25
Posted
  • Author

Weird thing is that I started a Gluten Free Diet and in the mist of moving 1500 miles this week I ate Gluten and woke up this morning fatigue as hell, cold sore in my mouth, and flu feeling. Per my primary dr the celiac panel was negative but I know that the test I took above can relate to Celiac and is specific for the small bowel. My gastro said from day one he thinks it from food allergy cause of the positive Esophinils but became confused after the positive blood test. I am a text book case. LOL. I am starting gluten free again today. Uuggg..

ravenwoodglass Mentor
ravenwoodglass
Posted

Weird thing is that I started a Gluten Free Diet and in the mist of moving 1500 miles this week I ate Gluten and woke up this morning fatigue as hell, cold sore in my mouth, and flu feeling. Per my primary dr the celiac panel was negative but I know that the test I took above can relate to Celiac and is specific for the small bowel. My gastro said from day one he thinks it from food allergy cause of the positive Esophinils but became confused after the positive blood test. I am a text book case. LOL. I am starting gluten free again today. Uuggg..

Glad to hear your starting back on the diet again. Don't be surprised if your tied to the bathroom in a day or two.

I hope you are feeling better soon. Some sublingual B12 may help a bit with the fatigue.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,891
    • Most Online (within 30 mins)
      7,748
    RyanDunn
    Newest Member
    RyanDunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JulieRe
      Oral thrush question

      By JulieRe · Posted

      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      Gluten free beer ?

      By Ceekay · Posted

      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      Advice while waiting for testing

      By Scott Adams · Posted

      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.