Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Only Celiac In The Family


Becksabec

Recommended Posts

Becksabec Apprentice

I'm the only known celiac in my family, and I'm wondering if that's the case with anyone else. I've read a lot of about multiple people in the same family with it, and getting tested if someone in your family has it - but I seem to be the only one.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Has all of your family been tested and come up negative? Do they have any other health issues? You may just be the only one with positive test results or you may just be the only one that wants to admit it and change their diet. I started a thread a while back about people in my life that I suspect have celiac/gluten issues but they don't want to hear about it. Some people would rather die than change their diet. So unless the symptoms get severe (to the point of interfering with their life) they may not ever tell you about them. If you feel alone in this, that's what this board is for.

Becksabec Apprentice

Has all of your family been tested and come up negative? Do they have any other health issues? You may just be the only one with positive test results or you may just be the only one that wants to admit it and change their diet. I started a thread a while back about people in my life that I suspect have celiac/gluten issues but they don't want to hear about it. Some people would rather die than change their diet. So unless the symptoms get severe (to the point of interfering with their life) they may not ever tell you about them. If you feel alone in this, that's what this board is for.

No one in my family has been tested, no, but everyone is in very good health.

torimuse Rookie

I'm almost dead certain that my mother has gluten intolerance, but she's too set in her ways. I was just recently self-diagnosed, and all of her symptoms match up to what other people seem to have, but she doesn't consider them symptoms of anything, it's all normal for her. It also wasn't until I diagnosed myself that two of my cousins began suspecting their children and perhaps themselves as being sick at all. My great grandmother didn't hardly eat anything that didn't grow out of her garden, so it's possible she was intolerant as well. Maybe even though your relatives appear to be healthy, they could possibly have a dormant gene, or unrecognized symptoms.

Tina B Apprentice

I'm the only known celiac in my family, and I'm wondering if that's the case with anyone else. I've read a lot of about multiple people in the same family with it, and getting tested if someone in your family has it - but I seem to be the only one.

I am the only one so far in my family. However, I suspect that one of my brothers may have it but doesn't want to hear about being tested. He has lots of IBS type symptoms.

RideAllWays Enthusiast

I'm the only one diagnosed, but I'm quite sure my mom has it and maybe even my sister. They both went gluten free to try it and felt great (D disappeared, bloating went down, less headaches)..but decided it was a lot of work and stopped. I'm trying to convince my mom to get tested but she says that I just want somebody else to be like me..

Tina B Apprentice

I'm the only one diagnosed, but I'm quite sure my mom has it and maybe even my sister. They both went gluten free to try it and felt great (D disappeared, bloating went down, less headaches)..but decided it was a lot of work and stopped. I'm trying to convince my mom to get tested but she says that I just want somebody else to be like me..

She needs to realize that her risk of T-cell lymphona is extremely high with untreated celiac disease. it can be fatal and no cake or bread in the world is worth that to me even if I were someone who didn't get symptoms right away.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

    2. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

    4. - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,746
    • Most Online (within 30 mins)
      7,748

    CarlyRenee
    Newest Member
    CarlyRenee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
    • knitty kitty
      How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  
    • knitty kitty
      Yes, I have noticed a big difference.  I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me.  At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university.  I went gluten free.  I started taking vitamins according to my nutritional deficiency symptoms.  Vitamins worked.  My health improved.  Now I'm here to help others.  Celiac disease causes malabsorption which results in malnutrition.  Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more.  TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more.  Every cell in the body needs thiamine to make energy so the cell can function.  Without sufficient thiamine, mitochondria die.  Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes.  Thiamine has antiviral and antibacterial properties.   We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates.  The more carbs one eats the more thiamine is needed to process them into energy.  If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition.   We may not be getting sufficient thiamine from our diets if we eat a gluten free diet.  Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts.  Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine.    Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/
    • Wheatwacked
      Yes, I would be good with the diagnosis.  While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels.  Recovery from either disease requires avoiding gluten.  celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has to self repair in addition to the nutritional deficiencies.   Nonceliac Gluten Sensitivity Dr. Weston Price's research in the 1930s showed that diets rich in minerals and fat-soluble vitamins (A, D3, K2) promoted well-mineralized teeth, while deficiencies led to weaker enamel. Fatty liver, Intermittent diarrhea, Severe abdominal distension Choline deficiency causes abnormal deposition of fat in the liver, which results in a condition called nonalcoholic fatty liver disease. In some people, choline deficiency causes muscle damage. https://lpi.oregonstate.edu/mic/other-nutrients/choline    Choline is a large part if the bile salts for fat digestion, Acetycholine, a neural transmitter, mitochondria membrane structure, and along with folate, B12, and B6 recycles homocysteine  High homocysteine can damage artery linings. Low vitamin D levels are associated with increased symptoms of depression and anxiety,  autoimmune diseases and most of your symptoms.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.