Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Normal?


Becksabec

Recommended Posts

Becksabec Apprentice

I was only diagnosed a couple months ago, and in the beginning, I found myself kind of depressed about being on the gluten-free diet. I missed being able to eat whatever I wanted, and it was even worse when I saw my friends and family eat things I couldn't have, in front of me.

But now, I feel like I don't even miss it. I was the grocery store with my roommate a few days ago, and the guy in line in front of us was buying two loaves of wheat bread. My roommate said, "Does that bother you?". My response was, Not only does it not bother me, but I no longer have a desire for it. I've found that the cravings are no longer there, especially since I've become so much more healthier since being gluten-free.

I had so many different health issues before. I felt like my life was a constant doctor appointment, and I always being tested for things, and never really finding out the cause. I had pretty bad anemia, and it got to the point where some days I couldn't even get out of bed. I wasn't able to work or go to school due to it. Now that I'm healthier, I was able to go back to college and do all of the things I wasn't able to before.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I still miss being spontaneous and eating at any place at any time. But the food doesn't bother me otherwise. Some of it is that I have found substitutes that I really like. Hub made glutenfull pancakes today. They made the house smell wonderful but I didn't want any. I've actually discovered things to eat that I didn't know about. We like the rice tortillas for some things better than the whole wheat ones we used to get.

Becksabec Apprentice

I still miss being spontaneous and eating at any place at any time. But the food doesn't bother me otherwise. Some of it is that I have found substitutes that I really like. Hub made glutenfull pancakes today. They made the house smell wonderful but I didn't want any. I've actually discovered things to eat that I didn't know about. We like the rice tortillas for some things better than the whole wheat ones we used to get.

Oh yeah, I've actually had fun trying to discover all the possible substitutes. I do buy some of the alternative products, and I've done a lot of experimenting with baking. Actually, I think it was the baking that kept me sane in the beginning.

burdee Enthusiast

I was only diagnosed a couple months ago, and in the beginning, I found myself kind of depressed about being on the gluten-free diet. I missed being able to eat whatever I wanted, and it was even worse when I saw my friends and family eat things I couldn't have, in front of me.

But now, I feel like I don't even miss it. I was the grocery store with my roommate a few days ago, and the guy in line in front of us was buying two loaves of wheat bread. My roommate said, "Does that bother you?". My response was, Not only does it not bother me, but I no longer have a desire for it. I've found that the cravings are no longer there, especially since I've become so much more healthier since being gluten-free.

My reaction to the gluten free diet was very similar to yours. I was soooo glad to learn what caused and how to prevent my excruciating gut pain that I didn't miss gluten, because I didn't miss the pain. Also I was coached during my first few days by a friend whose husband has celiac disease. She told me what foods and brands that I could substitute for all the gluten containing foods I previously ate.

Then I joined a local celiac support group and purchased a few books about gluten free living and cooking, which taught me even more. When the leader of my group resigned, I assumed leadership of that group for the next 3 years. As leader, I received many free samples of gluten free foods from companies which wanted me to introduce their foods to my group. I also organized and managed 2 celiac awareness walks and gluten free food fairs in my city. Being actively involved in the celiac community and learning as much as I could about gluten free living prevented me from 'missing' any gluten containing foods.

However, I had more difficulty adjusting to my other 6 food allergies (dairy, soy, egg, cane sugar, vanilla and nutmeg) . Nevertheless, as I found substitutes (and companies made new, tasty substitutes) for foods which contained my allergens, I no longer missed those foods. Even with 7 food restrictions, I have many delicious choices, so that I never miss any foods which contain my allergens.

SUE

Saz36 Newbie

My reaction to the gluten free diet was very similar to yours. I was soooo glad to learn what caused and how to prevent my excruciating gut pain that I didn't miss gluten, because I didn't miss the pain. Also I was coached during my first few days by a friend whose husband has celiac disease. She told me what foods and brands that I could substitute for all the gluten containing foods I previously ate.

Then I joined a local celiac support group and purchased a few books about gluten free living and cooking, which taught me even more. When the leader of my group resigned, I assumed leadership of that group for the next 3 years. As leader, I received many free samples of gluten free foods from companies which wanted me to introduce their foods to my group. I also organized and managed 2 celiac awareness walks and gluten free food fairs in my city. Being actively involved in the celiac community and learning as much as I could about gluten free living prevented me from 'missing' any gluten containing foods.

However, I had more difficulty adjusting to my other 6 food allergies (dairy, soy, egg, cane sugar, vanilla and nutmeg) . Nevertheless, as I found substitutes (and companies made new, tasty substitutes) for foods which contained my allergens, I no longer missed those foods. Even with 7 food restrictions, I have many delicious choices, so that I never miss any foods which contain my allergens.

SUE

Hi, i was diagonised celiac in january and at first found the diet really easy, managed to avoid dairy, sugar and yeast successfully to, but then came the soya intolerance and it took weeks to get my head round but i finally managed it, Then just when i thought things were improving bang comes the corn allergy and i cannot get my head round it. I spectacularly came off the wagon for a couple of weeks because ijust reacted to anything i ate so i figured i would eat whatever i wanted. Very stupid i know. I am now back to eating meat/fish/poultry/ limited fruit and veg and gingerly trying eggs. I feel worse and more lethargic eating tese foods than i did when i ae all my intolerances. I read on here about people baking and replacing their favourite foods but it always seems to contain some of my problem foods. The thought of six to twelve months on this diet doesn't sound appealing and i'm scared that when i have the cravings i haven't the willpower to resist. How does everyone else cope??? or are your symptons so severe they put you off???? I am scared that when i get this corn/fructose thing sorted that something else is gonna rear its ugly head and i will be left with nothing to eat.

Sorry for the rant but no one i know has any answers and the doctors are rubbish although i am back at the hospital tomorrow, i don't hold out much hope.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    2. - pothosqueen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Celiac for dummies

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,006
    • Most Online (within 30 mins)
      7,748

    William Boyd
    Newest Member
    William Boyd
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
    • pothosqueen
      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
    • trents
      Would it be rude to ask your age?
    • pothosqueen
      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.