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Tired And Frustrated And Still Not Feeling Well


Sharon326

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Sharon326 Newbie

Hi I am 46 years old, was diagnosed hypothyroid 5 years ago after 3 years of unexplained weight gain, hair loss and exhaustion, etc... last year I was diagnosed with Hashimoto's Disease and about a month ago I was told to try a gluten free diet although my blood test were negative, I have close family members who have Celiac


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burdee Enthusiast

Hi I am 46 years old, was diagnosed hypothyroid 5 years ago after 3 years of unexplained weight gain, hair loss and exhaustion, etc... last year I was diagnosed with Hashimoto's Disease and about a month ago I was told to try a gluten free diet although my blood test were negative, I have close family members who have Celiac

T.H. Community Regular

My body's a bit crazy - but had a lot of pain and other issues that sound somewhat similar. I just answered another thread about what happened in my case, in case it helps, and I'll just link to that! :)

Good luck - I hope that someone here has the answers that match your need so you can start to feel better!

Skylark Collaborator

Not everyone does well on only Synthroid. Has your endocrinologist looked at your free T3 and reverse T3? You may need cytomel to get rid of your hypothyroid symptoms if you've been a month on Synthroid and your TSH is properly suppressed.

Sharon326 Newbie

Thanks everyone. I have been away for a few days and am finally getting a chance to check back in. I appreciate that you took the time to respond.

I think there may be somethimg to the Vitamin D overdose thing. So I think I will cut back.

I'm also thinking of seeing an allergist to see if there might be something else making me feel so badly.

As for my Thyroid,I think I've tried every Thyroid med on the planet...although my levels are in the "good range" I have never felt any relief nor lost any of the wieght I gained. I can always tell when my anit-bodies are on the attack as I get severe anxiety and gain a little more wieght...My endo does want me to go back onto the Cytomel. I didn't like the way it made me feel the last time I tried it. I became very nervous, I get that way on Armor Thyroid as well...I think I will go back on Cytomel to see if I can tolerate it better.

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    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
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