Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleeplessness And Fatigue/newly Diagnosed Celiac


lynnmb

Recommended Posts

lynnmb Rookie

My 12 year old daughter was diagnosed with Celiac 3 weeks ago and has been on a gluten free diet since then. She is feeling very tired much of the time during the day and also is having trouble falling asleep at night. Insomnia and fatigue have bothered her for years, though it seems magnified right now. Could the "feeling tired" be a result of her body healing?

Lynn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Many go through this, and researchers aren't quite sure why some of these things occur once gluten-free.

The best thing I know of to resolve the fatigue and sleep problems is B vitamins, especially vitamin B12. I'd recommend a 5mg methylcobalamin sublingual tablet, such as the one made by Source Naturals. Taken about an hour before bedtime, it gives the brain what it needs to produce melatonin, making for a good night's sleep. It is also necessary for the production of serotonin. These two brain chemicals are vital for normal sleep/wake cycles. Resolving such a deficiency can make wonderful improvements in other areas of health as well, including energy, mood, vision, nail, skin and hair health, and so much more.

A good strong co-enzyme B-complex is also a good idea, and should not be overlooked.

In addition, magnesium, vitamin D3, vitamin K2, omega-3s, and zinc may also be very helpful.

Lastly, don't overlook an iron deficiency, which can also cause fatigue. Has your daughter had any tests for nutrient deficiencies? Just keep in mind that the tests aren't very good or accurate for all nutrients, and it cannot hurt to try some supplements, even if tests say levels are normal.

lynnmb Rookie

Many go through this, and researchers aren't quite sure why some of these things occur once gluten-free.

The best thing I know of to resolve the fatigue and sleep problems is B vitamins, especially vitamin B12. I'd recommend a 5mg methylcobalamin sublingual tablet, such as the one made by Source Naturals. Taken about an hour before bedtime, it gives the brain what it needs to produce melatonin, making for a good night's sleep. It is also necessary for the production of serotonin. These two brain chemicals are vital for normal sleep/wake cycles. Resolving such a deficiency can make wonderful improvements in other areas of health as well, including energy, mood, vision, nail, skin and hair health, and so much more.

A good strong co-enzyme B-complex is also a good idea, and should not be overlooked.

In addition, magnesium, vitamin D3, vitamin K2, omega-3s, and zinc may also be very helpful.

Lastly, don't overlook an iron deficiency, which can also cause fatigue. Has your daughter had any tests for nutrient deficiencies? Just keep in mind that the tests aren't very good or accurate for all nutrients, and it cannot hurt to try some supplements, even if tests say levels are normal.

Thanks, Iron deficiency has been ruled out. Your suggestions for supplements are appreciated and we will give them a try!

T.H. Community Regular

My 11 year old daughter had the same issue - very exhausted after going gluten free.

I had been diagnosed celiac just a few weeks before her and was tested for food allergies, so that was on my mind when she started feeling worse.

The GI said that many celiacs have other food allergies or issues (sensitive to other foods) as well. Also, many celiacs have issues with preservatives, additives, and dyes, and they can have more issues with genetically modified foods (we went organic on my doc's advice).

Add to that - a new study found a connection between pesticides in produce and ADHD symptoms in children, recently, so it was recommending organic produce for kids, too.

We took the kids off of the 8 major food allergens, plus food allergies common to our family, and my daughter was much better very quickly. Trying to slowly add foods back in, we've discovered that she DOES have sensitivities to other foods. Harder time sleeping, more emotional outbursts, and exhaustion are the typical symptoms. Which seems almost impossible to tell if it was food or her, until you see how she is OFF the food, and then it's like night and day.

Also, if your doc didn't mention it, most celiacs are lactose intolerant until they've healed, so many doctors recommend staying away from dairy for the first few months after going gluten free. It lets the gut heal a little quicker. :)

My 12 year old daughter was diagnosed with Celiac 3 weeks ago and has been on a gluten free diet since then. She is feeling very tired much of the time during the day and also is having trouble falling asleep at night. Insomnia and fatigue have bothered her for years, though it seems magnified right now. Could the "feeling tired" be a result of her body healing?

Lynn

lynnmb Rookie

Thanks,

She is also lactose intolerant, and we do mostly organic. Can you share the the 8 common food allergins that you mentioned, I would love to have a list to work from and see if I need to eliminate other things. So far the dairy has been the most difficult to do without. We will be glad when she can have more of that!

Lynn

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748

    kyle68j
    Newest Member
    kyle68j
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...