Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleeplessness And Fatigue/newly Diagnosed Celiac


lynnmb

Recommended Posts

lynnmb Rookie

My 12 year old daughter was diagnosed with Celiac 3 weeks ago and has been on a gluten free diet since then. She is feeling very tired much of the time during the day and also is having trouble falling asleep at night. Insomnia and fatigue have bothered her for years, though it seems magnified right now. Could the "feeling tired" be a result of her body healing?

Lynn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Many go through this, and researchers aren't quite sure why some of these things occur once gluten-free.

The best thing I know of to resolve the fatigue and sleep problems is B vitamins, especially vitamin B12. I'd recommend a 5mg methylcobalamin sublingual tablet, such as the one made by Source Naturals. Taken about an hour before bedtime, it gives the brain what it needs to produce melatonin, making for a good night's sleep. It is also necessary for the production of serotonin. These two brain chemicals are vital for normal sleep/wake cycles. Resolving such a deficiency can make wonderful improvements in other areas of health as well, including energy, mood, vision, nail, skin and hair health, and so much more.

A good strong co-enzyme B-complex is also a good idea, and should not be overlooked.

In addition, magnesium, vitamin D3, vitamin K2, omega-3s, and zinc may also be very helpful.

Lastly, don't overlook an iron deficiency, which can also cause fatigue. Has your daughter had any tests for nutrient deficiencies? Just keep in mind that the tests aren't very good or accurate for all nutrients, and it cannot hurt to try some supplements, even if tests say levels are normal.

lynnmb Rookie

Many go through this, and researchers aren't quite sure why some of these things occur once gluten-free.

The best thing I know of to resolve the fatigue and sleep problems is B vitamins, especially vitamin B12. I'd recommend a 5mg methylcobalamin sublingual tablet, such as the one made by Source Naturals. Taken about an hour before bedtime, it gives the brain what it needs to produce melatonin, making for a good night's sleep. It is also necessary for the production of serotonin. These two brain chemicals are vital for normal sleep/wake cycles. Resolving such a deficiency can make wonderful improvements in other areas of health as well, including energy, mood, vision, nail, skin and hair health, and so much more.

A good strong co-enzyme B-complex is also a good idea, and should not be overlooked.

In addition, magnesium, vitamin D3, vitamin K2, omega-3s, and zinc may also be very helpful.

Lastly, don't overlook an iron deficiency, which can also cause fatigue. Has your daughter had any tests for nutrient deficiencies? Just keep in mind that the tests aren't very good or accurate for all nutrients, and it cannot hurt to try some supplements, even if tests say levels are normal.

Thanks, Iron deficiency has been ruled out. Your suggestions for supplements are appreciated and we will give them a try!

T.H. Community Regular

My 11 year old daughter had the same issue - very exhausted after going gluten free.

I had been diagnosed celiac just a few weeks before her and was tested for food allergies, so that was on my mind when she started feeling worse.

The GI said that many celiacs have other food allergies or issues (sensitive to other foods) as well. Also, many celiacs have issues with preservatives, additives, and dyes, and they can have more issues with genetically modified foods (we went organic on my doc's advice).

Add to that - a new study found a connection between pesticides in produce and ADHD symptoms in children, recently, so it was recommending organic produce for kids, too.

We took the kids off of the 8 major food allergens, plus food allergies common to our family, and my daughter was much better very quickly. Trying to slowly add foods back in, we've discovered that she DOES have sensitivities to other foods. Harder time sleeping, more emotional outbursts, and exhaustion are the typical symptoms. Which seems almost impossible to tell if it was food or her, until you see how she is OFF the food, and then it's like night and day.

Also, if your doc didn't mention it, most celiacs are lactose intolerant until they've healed, so many doctors recommend staying away from dairy for the first few months after going gluten free. It lets the gut heal a little quicker. :)

My 12 year old daughter was diagnosed with Celiac 3 weeks ago and has been on a gluten free diet since then. She is feeling very tired much of the time during the day and also is having trouble falling asleep at night. Insomnia and fatigue have bothered her for years, though it seems magnified right now. Could the "feeling tired" be a result of her body healing?

Lynn

lynnmb Rookie

Thanks,

She is also lactose intolerant, and we do mostly organic. Can you share the the 8 common food allergins that you mentioned, I would love to have a list to work from and see if I need to eliminate other things. So far the dairy has been the most difficult to do without. We will be glad when she can have more of that!

Lynn

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

    2. - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    3. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

    5. - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,285
    • Most Online (within 30 mins)
      7,748

    Kenny Waites
    Newest Member
    Kenny Waites
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.