Help! I Need A Real Dr. Who Knows About This! Ma

[Squeak1209]

I went on a gluten-free diet about 8 months ago and have been feeling great ever since. I've read up on celiac and even had my general physician take a blood test. She said the results were normal, I stupidly did not have her send me copies of the results to check for myself (and after reading posts, I feel I should have every result)! I've also recently realized that dairy makes me just as sick as gluten, so am trying to go dairy free (but I so love ice cream in 90 degree weather). I have noticed new symptoms over the past few months. My toe on my right foot has gone completely numb, with no explanation. I am very dizzy, tired, my thighs ache just walking up the stairs (mind you I am a very active person, and exercise regularly). If I stoop to pick up my neice, I get reallly dizzy, and see black and white spots in my vision. Sometimes the dizziness and spots are so bad I have to touch a wall to steady myself. I have become unsteady on my feet and very clumsy. I almost feel like I'm not getting enough oxygen to parts of my body and am wondering if this could be vitamin deficiency?

The dr. I currently have is (to be nice), not very well versed in celiac or gluten intolerance. I'm not even sure I have celiac, but I need a Dr. who knows this stuff as well as anyone can. I need help. I feel much better cutting dairy, gluten, nuts, and any processed food out of my diet, but am afraid that I may also be inadvertantly cutting out necessary vitamins and minerals unknowingly. I used to take a woman's multi-vitamin but it makes me sick to my stomach (even if I take it at night). I feel like I could be on the right track with cutting out the stuff that makes me sick, but I need a Dr. who can help me and tell me what veggies and fruits and meats I should be eating to keep myself healthy.

I live in Massachusetts, outside of Worcester. Someone please help, if you know a Dr. in the area that could help me, please let me know. I'm literally sick and tired of being sick and tired.

[Sarah1122]

Your experience sounds so similar to mine! I have been gluten free since my diagnosis in March 2010 - like you, I found that my PCP and the GI that diagnosed me were very nice, but not helpful after the diagnosis. They are baffled that I wanted tests ran, to determine where my health is at now, after what I believe to be 10 years undiagnosed.

Like you, I also have numbness and tingling

[Bennie]

ratemds.com is a good place to review doctors as well if you aren't sure where to start.