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Help Me Please!

shacon-bacon

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shacon-bacon Apprentice
shacon-bacon
Posted

Ugh I need opinions!!

Apparently I have a b12 deficiency which was discovered after some numbness/tingling in my arms and feet...Ok. So, started taking b12 vitamins and also one a days...yah...have been VERY careful about what I've been eating...for the past 3 weeks I've had weird, celiac sounding but not quite feeling symptoms....literally, EVERY time I eat, no matter WHAT I eat, diarrhea (sorry...true)...once I go, I'm better...but its seriously 3 minutes after I finish a meal, I go, I'm better...besides that, I have had ZERO energy...like literally, sleeping 14 hours on the weekends, spending days in bed, on the couch, zero energy to get up, falling asleep at my desk at work..obviously, no energy b/c I have no food staying in my body!!

But, I haven't eaten ANYTHING bad that I'm aware of and normal celiac symptoms for me go away in about 3 days and this has been 3 weeks...Please...has anyone experienced anything like this or have any ideas? I've been to 4 diff docs (for the b12 symptoms) in the past 2 months and am simply tired of seeing doctors who tell me to take a xanax and move on!!!

I'm sad :( I'm hurting and I need help! Anyone?

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GFinDC Veteran
GFinDC
Posted

Have you confirmed that the vitamin pills are gluten-free? Sometimes they put wheat grass or oat grass in them. It is probably something you are consuming every day that is affecting you. So check everything and if you can't figure it out, start eliminating things.

There is also the possibility of additional food intolerances developing over time. Like any of the top 8 including soy, dairy, etc.

Skylark Collaborator
Skylark
Posted

Sounds terrible. I bet it's the vitamins.

From oneaday.com:

Q. How much gluten does this contain?

A. We do not add any gluten to our products. However, we cannot guarantee that all raw materials are 100% gluten-free.

One-A-Day vitamins are junk anyway. They mostly go straight through you because the vitamins are the cheapest sort possible that are poorly bioavailable. May I suggest you buy a good brand like Solgar that will confirm the gluten-free status of their products?

shacon-bacon Apprentice
shacon-bacon
Posted
  • Author

Thanks I have switched to a brand that says specifically "gluten free"...I have also eliminated just about everything from my diet except fresh fruit and veg juice, cottage cheese, and gluten free soups...I feel like I need to heal...I'll give it a few days and slowly add more things back in...

Tina B Apprentice
Tina B
Posted

Sounds terrible. I bet it's the vitamins.

From oneaday.com:

Q. How much gluten does this contain?

A. We do not add any gluten to our products. However, we cannot guarantee that all raw materials are 100% gluten-free.

One-A-Day vitamins are junk anyway. They mostly go straight through you because the vitamins are the cheapest sort possible that are poorly bioavailable. May I suggest you buy a good brand like Solgar that will confirm the gluten-free status of their products?

NatureMade brand are all gluten free.

Skylark Collaborator
Skylark
Posted

NatureMade brand are all gluten free.

I specifically suggested Solgar because they're Albion Gold Medallion. You know what's in the pill. Not so much with a lot of other brands. Nature Made is a particularly worrisome brand.

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LDJofDenver Apprentice
LDJofDenver
Posted

Thanks I have switched to a brand that says specifically "gluten free"...I have also eliminated just about everything from my diet except fresh fruit and veg juice, cottage cheese, and gluten free soups...I feel like I need to heal...I'll give it a few days and slowly add more things back in...

Have you confirmed the vegetable juice to be gluten free?

And, soups. What soups? Many Progresso soups that were gluten free last year are no longer safe. And the Health Valley Organic soups - if any list "natural flavors" the company says celiacs should avoid all those.

How about spices? Gluten can often show up in spices as well.

Many celiacs have trouble with dairy (cottage cheese!). A lot of folks on this forum, and some nutritionists, advise that you eliminate any dairy for the first year of your gluten free diet. If you've verified everything else, and are sure you're not getting cross contaminated (using old or shared toaster?), perhaps eliminate cottage for a few days and see if that changes anything.

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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