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Home Testing

Bettie

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Bettie Newbie
Bettie
Posted

Hello everyone, I just woundered what everyone else thinks of the home testing kits for celiac. I have just done one and it came out negative. I am still going to doctors for my blood test. If I have an intolerance to gluton rather than Celiac disease would that show negative on a test for Celiac?

All feed back is welcome

Best wishes

Kerry x

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ravenwoodglass Mentor
ravenwoodglass
Posted

What home test did you do?

Bettie Newbie
Bettie
Posted
  • Author

What home test did you do?

The home test is called Biocard. It is a blood test, there are others out there. I got mine from ebay.

tarnalberry Community Regular
tarnalberry
Posted

All that thing tests for is TTg IgA. If you're IgA deficient, you'll get a negative whether you have celiac disease or not. If you think you have it, and you're eating gluten, I'd encourage you to get a full celiac panel, including the IgG antibodies and total IgA.

missceliac2010 Apprentice
missceliac2010
Posted

I have no idea which home tests/doctor tests are better. But I do know this.... I went through an upper-GI with biopsies AND doctor blood work while hospitalized for unexplained horrific belly pain/vomiting/diarrhea. While in the hospital, they had me "NPO" (no food/drink by mouth). Turns out that because when they took the biopsies and blood, since I had already been on an inadvertent gluten-free diet...my results were both negative! (Or at least I have been told that could be the culprit.) My doctor offered to have me go back on gluten and repeat the test in a month after intentionally making myself sick to try and get a positive test...I said no thanks!

Regardless, the GI doctor who did my scope told me to go home on a gluten-free diet to try it while I waiting for test results. After 3 days it was like a miracle! When the lab results came back negative for Celiac, with the help of this board and family, I said to heck with those stupid tests! I know my body, and I know I have Celiac!

IMHO, all of the tests are so wrong so much of the time...it's not worth the bother. So many people on this board repeat the same story..."test results say negative, but I feel better on a gluten-free diet...etc!) It's so much easier to just not eat gluten! Unless you need a diagnosis code or something for certain prescriptions or a GI doctor referrall, I would say skip it. All those tests did was bring me down and upset me.

Good luck! Let us know what you decided and your results! I'm curious!

Bettie Newbie
Bettie
Posted
  • Author

Thankyou for your reply's,

:D ( he likes to look after me) And I went 28 hours without gluton, my tummy started huting really bad for two nights. I am back on gluton now as I realized that I need to be on it for my tests.

I went to doctors about a week a go as my mum noticed that my " beer belly " went down alot when I stoped eating bread. She has a friend with celiac. The doctor agread after I told him some other symptoms. I have been suffering with deppression and panic attacks. And after reading how other people feel when they stoped eating gluton I am starting to hope that celiac is what I have. I just want to feel normal and happy again. But if I do have negative results again then I will go gluton free any way. My boyfriend when he found out what maybe wrong went shopping and bought me some food that have no gluton in

Thankyou again for your input it has helped me to put some questions together for the doctor, see what other tests are available. I only want it on paper so I can get the prescriptions.

Skylark Collaborator
Skylark
Posted

Biocard tests are very good if you are not IgA deficient, but they don't test for gluten intolerance.

There are no prescriptions for celiac disease, so I'm not sure what you expect from the diagnosis. The treatment is a gluten-free diet.

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Bettie Newbie
Bettie
Posted
  • Author

Biocard tests are very good if you are not IgA deficient, but they don't test for gluten intolerance.

There are no prescriptions for celiac disease, so I'm not sure what you expect from the diagnosis. The treatment is a gluten-free diet.

The prescription is to get bread and pasta. It will mean I get these with out paying for them. As we know it is expensive. Im from England so I guess things are a little different over here.

Thanks for your help. I will just stick with the doctors. :D

Skylark Collaborator
Skylark
Posted

The prescription is to get bread and pasta. It will mean I get these with out paying for them. As we know it is expensive. Im from England so I guess things are a little different over here.

Thanks for your help. I will just stick with the doctors. :D

Sorry, I assumed you were on the US side of the pond. We don't get any help over here with gluten-free food so there isn't really a point to getting a diagnosis.

Yes, stick to doctors and good luck with it.

Bettie Newbie
Bettie
Posted
  • Author

Sorry, I assumed you were on the US side of the pond. We don't get any help over here with gluten-free food so there isn't really a point to getting a diagnosis.

Yes, stick to doctors and good luck with it.

Thankyou for your support, this site has been so helpful, I wish you well

Kerry x

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
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