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Recent Activity
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- trents replied to Pamp8's topic in Dermatitis Herpetiformis1Dermatitis Herpetiformis
Welcome to the forum, @Pamp8! As to your first question, it is possible to have only the epidermal form of celiac disease but it is not common. Most people who have dermatitis herpetiformis also have damage being done to the villous lining of the small bowel. As to your second question, most likely you are getting some gluten contamination from... -
- Pamp8 posted a topic in Dermatitis Herpetiformis1Dermatitis Herpetiformis
I'm new here, although in the past I know I've read some of the messages. My doctor and I have long suspected that I have celiac. I have several other autoimmune illnesses. But, my celiac biopsy was negative, so I started eating a lot more gluten. Over the last several years, I've had minor bouts of an extremely itchy rash that I was correlating to gluten... -
- leenora replied to MagsM's topic in Related Issues & Disorders7Inflammation and Menier’s disease link?
P.S. I also suffer from Meniere's and Hashimoto's thyroid disease, osteopenia since 40 y.o. These all were diagnosed before the Celiac Disease! And I believe it is all interconnected. -
- leenora replied to MagsM's topic in Related Issues & Disorders7
Inflammation and Menier’s disease link?
Hi Mags, I was diagnosed almost 4 years ago at 57y.o, also of Irish heritage, my mom's from Co. Galway. Have your doctors run an immune globulin panel. My IgA was undetectable & that is what the usual bloodwork for celiac relies on. For example, my tTG IgA was below 2 & deamidated Gliadin IgA was 5, both in normal range. In other words, you do not... -
- MCS replied to HilaryM's topic in Related Issues & Disorders4New onset constant gas
Not sure of your diet but I also experienced this after being diagnosed and going gluten free. Turned out to be issue with both gluten free oats and dairy. I gave up the oats and all dairy except hard cheeses and it relieved both bloat and gas. Also if you have not recently have your iron and sodium levels checked, mine were both very low and per my doc contributed...
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Welcome to the forum, @Pamp8! As to your first question, it is possible to have only the epidermal form of celiac disease but it is not common. Most people who have dermatitis herpetiformis also have damage being done to the villous lining of the small bowel. As to your second question, most likely you are getting some gluten contamination from an unknown source on occasion that you are unaware of and are not suspecting. It could be something like in a medication or supplement you are taking or an oral hygiene product you are using or a spice you are using in your cooking. You might also look into a low iodine diet as iodine is known to exacerbate dermatitis herpetiformis. As to...
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I'm new here, although in the past I know I've read some of the messages. My doctor and I have long suspected that I have celiac. I have several other autoimmune illnesses. But, my celiac biopsy was negative, so I started eating a lot more gluten. Over the last several years, I've had minor bouts of an extremely itchy rash that I was correlating to gluten, but it wasn't very bad and would improve in a short amount of time. Last year, I had a bout that was a bit worse, but it went away rather quickly, so I didn't think too much about it. Fast forward to this year. I have had a REALLY BAD case of it, for a few months, so I went to a dermatologist, and she diagnosed dermatitis herpetiformis...
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P.S. I also suffer from Meniere's and Hashimoto's thyroid disease, osteopenia since 40 y.o. These all were diagnosed before the Celiac Disease! And I believe it is all interconnected.
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Hi Mags, I was diagnosed almost 4 years ago at 57y.o, also of Irish heritage, my mom's from Co. Galway. Have your doctors run an immune globulin panel. My IgA was undetectable & that is what the usual bloodwork for celiac relies on. For example, my tTG IgA was below 2 & deamidated Gliadin IgA was 5, both in normal range. In other words, you do not have celiac. I HAD TO ASK THE DOCTOR TO RETEST ME using IgG versions of both tests! When he did tTG IgG = >100 ( range 0-5) & the deamidated gliadin IgG = 219 (range 0-19). I also had 2 copies of the gene on 23&me. It is sad that you have to tell the doctors what to test for, but you have to do your research & be your own advocate...
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Not sure of your diet but I also experienced this after being diagnosed and going gluten free. Turned out to be issue with both gluten free oats and dairy. I gave up the oats and all dairy except hard cheeses and it relieved both bloat and gas. Also if you have not recently have your iron and sodium levels checked, mine were both very low and per my doc contributed to the bloating issues.
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