I Just Found Out That My Gastroenterologist Ordered Another Test For Igg, Iga, Igm .

[Simona19]

Hi again!

My gastroenterologist ordered the test for IgG, IgA and IgM after two months I have been on the gluten free diet. It came back negative. He told me that I can eat gluten because the results are negative. He told me that I should eat everything (fat, sugar, gluten). I saw in his eyes that he doesn't believe me. He thought that I'm making myself more sick that I'm. My biopsy from the small bowel showed:

Duodenum, biopsy: Small bowel mucosa with focal epithelial infiltration by lymphocytes (>40 lymphocytes/100 enterocytes). The villous architecture is preserved. No crypt hyperplasia identified. The findings are nonspecific and are associated with early celiac disease (MarshI). Correlation with clinical findings and serology suggested.

IgG, serum 1213, referance range: 694 to 1618;

IgA, serum 251, referance range: 81 to 463:

IgM, serum 186, referance range: 48 to 271.

He also ordered test for my pancreas which came back elevated for hormone gastrin (sign that isn't working properly), thrypsin (still pending) and test also showed inflamation in my body.

I also had undigested fat in a stool sample. All this is the sign of pancreatitis or pancreatic insuficiency, but he ordered me to eat everything and come back to see him after month. Hm... I can't eat that because after any fat I'm very sick.

Any thoughts? Any referal to a good doctor in New Jersey, New York?

[ravenwoodglass]

How have you been feeling since you went gluten free? Have you seen resolution of any of your issues? If the diet is helping you don't need your doctors permission to continue on it.

[nora-n]

Those were no celiac blood tests, just total IgA and so on.

[Simona19]

These days I haven't been eating much. I have cut out completly dairy too. Before my "diagnosis" I had diarrhea very often. After I ate something with milk in it I was just running to the bathroom like crazy. I just realized that I have always experienced a gigantic abdominal pain, bloating and very very bad diarrhea ( sometimes 9-11 times a day)during my period. I was always very sick, and what I ate was just a piece of bread, tea, chicken soup with noodles, crackers, but no milk. Three times it was so bad that I ended up at the emergency room. Doctors told me that I might have IBS. Was the gluten the cause? I think so because for the two months on Gluten Free and Milk Free diet I didn't have any diarrhea yet. Not even through my period( I had just one since I went gluten-free).

After reading older posts I'm overvelmed from the people's reaction to stay so easily Gluten free. In my mind I know that it is bad for me, but my stomach still crave foods with gluten in it. Every doctor that I saw told me that I can eat gluten. Tests are confusing. I'm following very stricktly no gluten, no milk, no fat and no sugar diet. Right now I'm sick. Maybe it's my pancreas or the gluten withdraw, but when I will be ok again, I don't know how I would cope with all this. I'm very good cook, baker (special Europien pastry, weding cakes,..), and I need to taste some things in a process of making them. I would have to change all my recipes which would be very hard becauce many ingrediences don't have substitutes. I don't even know how I feel about all this. I'm looking for a medical proof that I can't eat gluten. What you think? Do I have a celiac disease?

[Simona19]

Those were no celiac blood tests, just total IgA and so on.

What should be tested?

My doctors don't know what to do with me. To them I'm just a hypochondriac. I feel much better now. I still have a issue with my pancreas, but all over I'm better. I don't have insurance, and I need to pay for the tests myself. Would I tell them that it is something wrong with me just for fun? I would have to pay many bills for it later.

[cassP]

What should be tested?

My doctors don't know what to do with me. To them I'm just a hypochondriac. I feel much better now. I still have a issue with my pancreas, but all over I'm better. I don't have insurance, and I need to pay for the tests myself. Would I tell them that it is something wrong with me just for fun? I would have to pay many bills for it later.

you sound like me. i personally needed a diagnosis to motivate me 100%. so, she's right above- about your test- but you're off to a good start- at least you know you're not "IGa deficient"- which "should" mean that if you're ingesting enough gluten- your Celiac panel should be conclusive

Celiac panel should include: Endomysial Antibody, Ttg Iga & Igg, and Antigliadin IGA&Igg i believe.... but this is your personal decision- i dont wanna be responsible for telling someone to eat wheat.

if you really want the blood test- you're gonna have to eat enough wheat for 4-6 weeks- and don't worry about the cost- do a payment plan every month- your health is worth it. the price of a biopsy is another story- but your blood test may be definitive enough.

after all that- u MAY want to order the Gene test through Enterolab- that was enough for me to stick to the diet.

hang in there

[Skylark]

I'm looking for a medical proof that I can't eat gluten. What you think? Do I have a celiac disease?

The absolute best medical "proof" that you can't eat gluten is removing it from your diet and feeling better. The best doctors don't really trust the tests because so many people test negative and still get sick from gluten.

You have a Marsh I biopsy and you say your chronic diarrhea improved gluten-free. If you really don't believe your biopsy, you can go back to eating gluten and see how you feel. If the diarrhea comes back you have the strongest answer you could possibly get. Personally, I wouldn't challenge with gluten and risk developing more autoimmunity with the Marsh I biopsy but it's up to you.

Since you are not IgA deficient, the formal testing would be anti-gliadin IgA, anti-tTG IgA, and anti-endomysial IgA after you have been eating about four slices of bread worth of gluten daily for a month. You will not have antibodies if you're not eating enough gluten for long enough. Some people prefer to get Enterolab testing. It isn't diagnostic, but it's easier to get a positive result.

As far as baking gluten-free, Open Original Shared Link is written by a professional French pastry chef and she has worked out a lot of gluten-free recipes for her celiac husband.