Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic Bronchitis


giselle

Recommended Posts

giselle Newbie

Hi everyone,

I am new here, I am SO grateful to have found this board because I feel like I am on the verge of falling apart. In brief, I wanted to know if anyone has had the experience of getting repeated episodes of bronchitis, asthmatic bronchitis, or other similiar illnesses while still ingesting wheat and gluten. I am too sick to begin to explain everything, but I am only just beginning to go wheat free. I developed chronic bronchitis over a year ago and have had so many antibiotics/inhalers, etc. and I keep relapsing. I am very frightened from being so sick and weak. My life is in standstill, I can barely function or think. Sorry for the poor writing.

I am newly diagnosed and overwhelmed. Very depressed and teary. But most of all, the bronchitis is scaring me because of how sick it makes me and my doc says I will get resistant to meds if we arent careful. I am about to have a sputum culture done as well.

I would be so very grateful for any feedback.

Completely overwhelmed, giselle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Eloisa

Giselle,

Sorry you feel so bad but I completely understand. I used to get chronic sinus infections and my husband used to get chronic bronchitus all the time. I know that having celiac disease weakens your immune system therefore you get sick easily and its takes longer to get well. I just want to let you know that there is hope in this. I take Reliv shakes which are nutritional supplement that are taken in liquid form and since I've taken them I no longer have sinus issues that turned into infections. I've completely gotton off of all my sinus medications and have not had a sinus infection since I've been on Reliv. My husband who was sceptical about taking anything finally went to a Reliv meeting and heard all the great health stories and was convinced to start taking Reliv. Since him being on it, he has not had any bronchial infections and is off his sinus meds as well. He also suffered from old athletic injuries (knee, broken vertibre, broken bones and arthiritus) and had severe intestinal damage in his early twenties. When he started taking Reliv he initially started because of all of the aches and pains he had from injuries but wound up benefiting from all other issues his body has been going through.

Eloisa

cdford Contributor

Also, if you use a hot tub regularly, be sure to tell your doctor as this can sometimes trigger infections that react like bronchitis.

Guest nini

yeah, prior to being dx and going gluten-free, I used to get upper respiratory infections and bronchitis ALL the time. Seems like I would just get off of treatment for one and BOOM along came another one.

anewsprue Newbie

Hello all, don't know if it's celiac disease related but I just got out of the hospital on Monday after being admitted with pneumonia and pleurisy. I still hurt, can't breathe well at times but feel a little better overall. I think my immune system has left the building, it's just been a very tough year. :(

giselle Newbie

Hi everyone,

Thanks for the great replies and info. I just got the results of my culture back and found I have Viral Chronic Bronchitis. It's good that I got a second opinion because I had been given 4 different very long courses of powerful antibiotics over the last year. My second doc said I was lucky to have not developed a resistant strep infection (MRSA), scary stuff.

After reading other posts here, it seems I have a severe case of fibro "fog" (also have fibromyalgia like several of you) and I guess that is why I am so mentally overwhelmed about where to begin in starting my wheat/gluten free diet.

I am happy to hear that many of you got relief from your bronchitis after starting the diet, so I guess I have some hope now. Perhaps I should go to the thread about the diet and see how others got going.

Thanks again for your efforts in helping me. In friendship, giselle

  • 1 month later...
BellaSara Newbie

I was having autoimmune problems and had chronic bronchitis all winter long. I decided to try the gluten free diet to see if it would help. After about five days I was doing good and my bronchitis was starting to heal. I went and I bought what I was told to be gluten free spelt bread. After about 3 pieces I got very tired and took a nap. My bronchitis came back full force and I was immobilized for a week. I also got a very bad case of plurisy which I still have slightly. All from three pieces of bread.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

For MANY years I would get Bronchitis so severly that I would end up as a patient in the hospital or intensive care. I had an 18 hour window to get on antibiotics before I ended up in the hospital. And of course this would always happen on a weekend LOL. Had the pneumonia shot and exactly 2 weeks later I had pneumonia and again landed in the hospital. Two years later I had a very rare and painful pneumonia and ended up in the hospital. Went from intensive care to cardiac intensive care. 6 days after I was admitted I had lung surgery. I was there two weeks and that was when my husband started talking about early retirement and to get me out of the cold. A long bout of allergy attacks would trigger Bronchitis and my doctor gave me potent antibiotics to keep on hand. Since I have been gluten-free (year and a half) I have not used an Epi-Pen and had one bout of Bronchitis the beginning of this year. It was Asthmatic Bronchitis and required a trip to the emergency room with lots of meds fed intraveniously - BUT, I was not hospitalized. This has been the best year and a half that I have had with only relative minor asthma problems (except for the one just mentioned. This beats the last 15 years. So, I think that going gluten-free made a big difference in all of this.

Armetta :D

Misa Rookie

Bronchitis was actually the reason I started to investigate celiac disease B) I got really bad coughing spells everytime I ate gluten grains. It took a while for me to see the connection, but one day after yet another coughing attack I suddenly said to a friend; Iget this everytime I eat bread. Saying it out loud made me think of course and just after the first gluten-free day my coughing stopped and hasn't returned in six weeks now..... :P

It just blows me away how many symptoms can be gluten-related.

Misa :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.