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Feeling Like Crud

firefightersgal

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firefightersgal Apprentice
firefightersgal
Posted

I've read some old posts on here about withdrawal symptoms, so I feel pretty confident that is what I'm going through, but I guess I need validation...

I am sooo lethargic. Despite the fact that I could barely keep my eyes open yesterday evening, I slept very little last night. Yesterday afternoon, I felt very light-headed and had to sit down a couple of times to prevent a fall. I've also had a craving for gluten that I've never experienced. I have to force myself to walk away from certain foods, and I almost feel a pain when I do. I feel weak and on edge all the time. I can barely stand talking to other people, particularly today. (One week gluten-free).

Of course, I'm still waiting to hear back from my doctor's office on my blood test, taken a week ago today. However, everything I've read tells me that it doesn't matter what the blood test says, I need to stay off of gluten.

On a positive note, my rash is getting better!

Any advice would be appreciated! Thanks!

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MaryLou Newbie
MaryLou
Posted

I've read some old posts on here about withdrawal symptoms, so I feel pretty confident that is what I'm going through, but I guess I need validation...

I am sooo lethargic. Despite the fact that I could barely keep my eyes open yesterday evening, I slept very little last night. Yesterday afternoon, I felt very light-headed and had to sit down a couple of times to prevent a fall. I've also had a craving for gluten that I've never experienced. I have to force myself to walk away from certain foods, and I almost feel a pain when I do. I feel weak and on edge all the time. I can barely stand talking to other people, particularly today. (One week gluten-free).

Of course, I'm still waiting to hear back from my doctor's office on my blood test, taken a week ago today. However, everything I've read tells me that it doesn't matter what the blood test says, I need to stay off of gluten.

On a positive note, my rash is getting better!

Any advice would be appreciated! Thanks!

Hang tight on the gluten avoidance. It's all one day at a time. After several weeks and feeling alive for the first time in years, finally slept after several years of insomnia. Then lactose intolerance reared its ugly head, and systems clogged. Also avoided all grains in an effort to curb inflammation. You may have some other "food" issues. :o It is a personal journey (and a puzzle) for each of us...but you are not alone.

vbecton Explorer
vbecton
Posted

Sounds like withdrawals to me. There was nothing on the internet that could have prepared me for the withdrawal symptoms. 2 straight weeks of feeling like a Mack truck ran me over. I felt so exhausted, had bizarre dreams, nauseated, strange BM's, out of control hunger. I only kept reading about withdrawals lasting 3 days. Well, 3 days was just the beginning for me. It was rough. But, worth it ;) Good luck, it will pass.

looking4help Apprentice
looking4help
Posted

Hang in there! As the previous posters said it is a personal journey. I had withdrawal symptoms for almost 3 solid weeks and then a bit more after that.

Hang in there and DO NOT GIVE UP! I am almost 4 months gluten free now and am still working on it.

(((((((((hugs)))))))))

captaincramp Newbie
captaincramp
Posted

Yep, I dont even know if I have celiac, but I think I do judging by the fact that I am 5 days gluten free and I have Gluten dreams, lightheadedness, EXTREME HUNGER, gas, bloating, fatigue, and to top it off shortness of breath You arent alone, I am panicking and freaking out about this too, because I dont eve know if this is what I have.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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