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Multiple Kids With Celiac

andrea2

By andrea2
in Coping with Celiac Disease

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andrea2 Newbie
andrea2
Posted

Hello everyone. I recently had my daughter tested for Celiac and she came back positive with her tTg levels >100. The GI doctor said to test my son and he came back with a weak positive at a 4. I am really shocked because he didn't have any symptoms that I know of other than maybe low iron off and on. My daughter on the other hand had many symptoms such as rash on face, belly aches, not on the growth charts for height, and barely for weight. I kinda expected her results to be high after researching everything but not with my son. Do other people have more than one kid with celiac? I got tested recently and tested negative. I am just feeling overwhelmed. It was enough to have to deal with this with my 2 year old daughter but now with my 5 year old son it's way too much! Please let me know if anyone else out there has had similar experiences. I am still waiting to go to the GI doctor to find out more about my son's levels but from what I understand a positive is a positive no matter what, right? They are just both so different and I am lost right now....

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weluvgators Explorer
weluvgators
Posted

Big hugs, Mama! You are not alone!! :)

We have three children (almost 3, 5, and almost 7), and all are very, very sensitive to gluten. I don't know what else to say to help, but you will find a rhythm to help navigate it all. Eating gluten free (dairy and soy free too) has been a blessing in so many ways for our family!

ravenwoodglass Mentor
ravenwoodglass
Posted

Nope your not alone. Both my kids have it also and also my exhusband, who is only the natural father of one of them.

Luckily it was caught early in them so they should heal fast. It may even be easier with both of them having it since you won't have one teasing the other with gluten food as in 'nah, nah you can't havve thissss and it's sooooo gooood' :D

You may just want to make the whole house gluten free and make sure that you and dad get tested also.

vbecton Explorer
vbecton
Posted

You aren't alone. My kids (2) are gluten sensitive and we are awaiting the test results for my son. But, I think it's actually better to have both on the same diet than to have one who can stray. I'm certainly not suggesting I'm glad they both have Celiac, but I'm saying that it's better that everyone join the gluten-free eating!

At the moment, my husband is eating regular wheat bread, but it's not allowed indoors...is that mean? ha! Otherwise, I'm the cook, so everyone eats gluten-free. I don't think I could handle a split household. Too many decisions for my brain to handle :blink:

Good luck. Hope the kids adjust well and swiftly!

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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