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Need To Re-Gluten My 2Yo For Panel - Please Guide Me

Gardening

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Gardening Apprentice
Gardening
Posted

Hi everyone!

I ordered Enterolab tests for myself and my two girls.

Briefly,

Me: mid-thirties, fibromyalgia, hypoglycemia, brain fog, occasional "bug crawling" sensation, lots of other little things

4.5 year old: Sensory Processing Disorder, repeat ear infections, even after tubes and adnoid removal, behavioral issues, pale skin and tongue, recently tested as having severe vitamin and mineral deficiencies, high chlosterol in stool sample, low bile acids, and no lactobaccilus at all, despite consuming yogurt regularly.

2.5 year old: slowed growth since she was 6 months old, showing signs of sensory issues, frequnt bms (just saw ped today about it in fact)

So, 4.5 year old and I received similar results: elevated fecal AGA IGA. Her score was 22, mine was 14. Everything else was normal.

I have 0201 and 0603. She has 0201 and 0202.

So then I open my little one's results:

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Anti-gliadin IgA 118 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 26 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score Less than 300 Units (Normal Range is less than 300 Units)

Fecal Anti-casein (cow

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Skylark Collaborator
Skylark
Posted

Yes, she needs to go to a GI. I wish Enterolab tested for anti-endomysial antibodies rather than just anti-TTG. Anti-TTG can show up in all the inflammatory bowel diseases, like microscopic colitis and Crohn's, while fecal anti-EMA is specific for celiac. She does have a pretty high anti-gliadin IgA and DQ2 which is more suggestive of celiac.

Most docs say four slices of bread a day for an adult. I'd guess two slices worth for her? That's probably about what my young nephew gets gluten-wise, as he eats part of a waffle with breakfast, half a sandwich or some maccaroni and cheese for lunch, and often chicken nuggets, pot stickers, or pizza at dinner. I hope it doesn't make her sick though. It's a little scary to feed a little kid who is having problems all that gluten. :unsure:

Gardening Apprentice
Gardening
Posted
  • Author

Skylark,

Thank you so much! For how long, do you think? She's been "gluten-lite" for 4-5 weeks now.

ravenwoodglass Mentor
ravenwoodglass
Posted

Skylark,

Thank you so much! For how long, do you think? She's been "gluten-lite" for 4-5 weeks now.

I would advise for 2 to 3 months. If she shows severe effects from the challenge IMHO it should be stopped. I would contact her GI or ped and have her seen before you start the challenge, tell them of the results you have seen on the gluten-free diet and then contact them quickly if she has severe symptoms when she does the challenge. Do keep in mind that false negative on blood and biopsy are even more common in children than they are in adults. The truest test is how she does on a strict gluten free diet.

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