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5 Weeks Gluten Free

LauraBeth

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LauraBeth Rookie
LauraBeth
Posted

I am still not feeling better and I have been so careful. I have an appt. with a GI specialist on the 20th so I'm pretty curious what they will have to say. My question is regarding other sensitivities- I haven't cut out dairy or anything else yet. I'm seeing that lots of you have also cut out dairy, soy, corn, etc. etc. I know that dairy is the main one. My major symptom has always been (and still is!) debilitating fatigue that truly prevents me from functioning normally. It feels like I am taking sedatives, and it's always worse in the afternoon. I haven't done any kind of elimination diet and am wondering if this is something I should do. I don't think it could hurt, but I just have no idea how to go about doing something like that. Any suggestions would be tremendously helpful.

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LauraBeth Rookie
LauraBeth
Posted
  • Author

Oh and just for the record, the title is supposed to say AS bad as ever, not AT bad! Oh well.

Chakra2 Contributor
Chakra2
Posted

I'm sorry to hear you're still

not feeling better. For what it's worth, I remember still feeling crummy at 5 weeks. My GI symptoms were improving but I still felt enormously fatigued. Eventually I eliminated dairy, soy, corn, some nuts and nightshades (based on allergy testing and my own experiments) and that helped. As my gut slowly healed, I started to feel better thanks to absorption of nutrients. It took me awhile to master the diet (3-4 months) and to weed out all the hidden gluten in the house (dog food, bath products, etc) and to learn how to avoid cross-contamination. It wasn't until 5 or 6 months had passed that I really started to feel good on a daily basis.

So maybe keep exploring what else might be affecting you and give yourself time to heal. I hope those things help!

Chakra2

LauraBeth Rookie
LauraBeth
Posted
  • Author

Thanks for the reply! I haven't looked at all my skin/ face products yet- I know Vitamin E can come from wheat germ sometimes so I need to contact the companies to find out. Also, I'm in the process of finding out if my BC pills contain gluten, my pharmacist seems to be having trouble finding a definitive answer. My doctor ran blood tests for food allergies and none of them came back positive- I know that doesn't always mean anything, though.

glutenfr3309 Rookie
glutenfr3309
Posted

Thanks for the reply! I haven't looked at all my skin/ face products yet- I know Vitamin E can come from wheat germ sometimes so I need to contact the companies to find out. Also, I'm in the process of finding out if my BC pills contain gluten, my pharmacist seems to be having trouble finding a definitive answer. My doctor ran blood tests for food allergies and none of them came back positive- I know that doesn't always mean anything, though.

the fatigue could also be a result of vitamin deficiencies. this is very common for celiacs. have your doctor run blood work to test all your levels.

LauraBeth Rookie
LauraBeth
Posted
  • Author

All of my vitamins and minerals have been tested. I was low in iron, D, B12 & B2. I take an Rx vitamin D weekly, liquid iron daily, a B complex daily, and B12 shots monthly. My levels have been in the "normal" range for awhile now since I've been doing all of this but I think they are still too low. I think it will just take time to get everything on track.

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      still struggling with cravings

      By wellthatsfun · Posted

      as my last post stated, i was diagnosed via endoscopy on the 14th of june. i have been eating amazing home cooked meals, luckily, mainly cooked by my boyfriend who is extremely careful about contamination (and is an incredible cook at that). however, i find myself in a mental rut still. being 18, this is the time in my life where i should be exploring things, going out, having fun. yet every corner i turn i'm tortured by the amazing smell of something i can't have anymore. the wonderful sight of such yummy foods. it's near torture. if my boyfriend and his friend who lives with us buy something i can't have, they'll usually eat it outside of the house or the car or wherever we are - which is greatly appreciated - but even seeing a burger or chips or a sausage roll in their hands guts me almost beyond repair. i just wanna have it again too. i miss it. i feel left out and it makes me very sad all the time. it's not their fault. they are allowed to eat whatever they want to, whatever their intestines will allow. it just stings, bad. and i feel so ungrateful given i basically have a private chef who is doubly the love of my life. but it's just so hard. i know i'll adapt. i haven't given up hope.i just wanted to vent. thank you for reading
    • RDLiberty
      Toothpaste question.

      By RDLiberty · Posted

      Thank you. I must have misinterpreted a study or something. Thank you for the clarification. Much appreciated. Almost three years into my celiac diagnosis and I'm still learning new things. 
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      Manitol and mri

      By RMJ · Posted

      I wasn’t clear, glucagon and gadolinium were intravenous. I drank about 5 cups of the prep during 45 minutes. I feel very tired now, probably partly because I was nervous, and partly because I had to fast for 6 hours beforehand and wasn’t very hungry when I got home.
    • nanny marley
      Manitol and mri

      By nanny marley · Posted

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      The solution I had to drink contained sorbitol and mannitol. I was in the MRI, lying on my back, for about 40 minutes. I was given glucagon partway through, and a gadolinium contrast agent. After I got home there was some diarrhea from the prep solution.
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