Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have To Pop My Knees And Lower Back All The Time...

lischro

By lischro
in Coping with Celiac Disease

Recommended Posts

lischro Apprentice
lischro
Posted

So after being gluten free for about a month it's becoming more obvious that a lot of my symptoms are more related than I thought. One of these is the issue of popping my knees and back-

I'm young- 24 years old and live a pretty active lifestyle (when I have the energy) but for the past few years I've noticed an intense urge to pop my knees- they feel like they just have to pop all the time and when I kick out my leg they almost always pop. It's kind of continuous throughout the day. When I'm sitting, standing, driving etc.

I also experience this with my back. I have a lot of lower back pain, mostly when I'm severely constipated- but I find myself popping my back a lot during the day. Even when I wake up in the morning I twist around in my bed to pop my lower back.

What's the deal? Is this related or similar to anything any of you have experienced?

It's ok to tell me this is completely unrelated :P:)

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Looking for answers Contributor
Looking for answers
Posted

So after being gluten free for about a month it's becoming more obvious that a lot of my symptoms are more related than I thought. One of these is the issue of popping my knees and back-

I'm young- 24 years old and live a pretty active lifestyle (when I have the energy) but for the past few years I've noticed an intense urge to pop my knees- they feel like they just have to pop all the time and when I kick out my leg they almost always pop. It's kind of continuous throughout the day. When I'm sitting, standing, driving etc.

I also experience this with my back. I have a lot of lower back pain, mostly when I'm severely constipated- but I find myself popping my back a lot during the day. Even when I wake up in the morning I twist around in my bed to pop my lower back.

What's the deal? Is this related or similar to anything any of you have experienced?

It's ok to tell me this is completely unrelated :P:)

Thanks!

Autoimmune diseases and food intolerances cause a lot of inflammation in the body, which can lead to pain and discomfort. When I was your age (I'm 32 now) and eating gluten, I felt like a 90-year old woman. I had bad lower back pain and my siatic (sp?) nerve would often freeze up and I would have trouble walking until it worked itself out. Now I'm glad to report the pain only comes back if I've eaten something I shouldn't.

K8ling Enthusiast
K8ling
Posted

I am hyperflexible, 6'1" and weighing in at a whopping 159 pounds. My physical therapist told me that I pop because my frame is so long...I am just really lanky. It's possible that it's the autoimmune joint swelling (in which case you would be sore too) or you could just have hyperlax joints :). My knees, elbows, neck, hips, back...everything pops on me. I am also freakishly good at yoga lol.

srall Contributor
srall
Posted

My neck pops all the time. I didn't realize my chronic neck pain was actually joint pain, not muscle pain, until I went gluten free. It's eased up a lot but if I have gluten, or another offending food the pain comes back and my neck pops again.

missceliac2010 Apprentice
missceliac2010
Posted

So after being gluten free for about a month it's becoming more obvious that a lot of my symptoms are more related than I thought. One of these is the issue of popping my knees and back-

I am 35 and have had bad back problems since I was 25. Before going gluten-free, I was in such chronic pain that I was on a heavy dose of a pain patch called Fentanyl. It's serious stuff...look it up.... AND I took, on average, 100 percocet per month, and it didn't touch my pain. Anyway, since going gluten-free, I am now totally of the extra percocet (I have a mere 30 vicodin per month for "flares", and I don't even need that much!) I am also tapering off my pain patches with great success! Me and my doctor think that within a month, I will be free of all pain medicine. And I could have gone off of it faster, but the heavy drugs I had to be on to keep me out of pain have such gnarly side-effects, that I have to taper very slowly, or else experience strong withdrawal symptoms.

Before my Celiac diagnosis, I thought I was sentenced to a life of pain killers and back pain. I had to stop being active (At one point in my life, before the Celiac "flared", I was running 10 miles per week), and did not much more than sit on the couch. Sitting through a family event was almost impossible, and my pain kept me home and sad more than I can tell you.

So is cracking of the joints/joint pain Celiac related? I say hell yes! My back used to be terrible. I was told I had a bulging disk (which I still have, but it's very minor) and severe arthritis in my back and joints. I didn't have arthritis, I had Celiac Disease! I got my life back since going gluten-free, and I hope you notice changes too. And if you "keep crackin", as long as it's not painful, I hope you learn to live with your "cracky-ness"! LOL! :0)

bridgetm Enthusiast
bridgetm
Posted

I've had similar problems with my back and knees but they were thought to be caused by 6 surgeries in one knee and the effects compensation and limping on my other knee and lower back. I am only 20, but I often sound like a 90 year old when I stand up. I did notice improvement when I went gluten-free but that coincided with an exceptionally good stretch of rehab so I thought nothing of it. However, if I eat something questionable those symptoms return. I was glutened this week and am now popping and cracking all the time.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

      That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies...
    2. knitty kitty
      0

      Vitamins I Take

    3. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

      @hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR...
    4. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Welcome to the celiac.com community @pothosqueen! Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run...
    5. pothosqueen
      - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,993
    • Most Online (within 30 mins)
      7,748
    Tchudi
    Newest Member
    Tchudi
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Positive biopsy

      By trents · Posted

      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      Mallorca Guide

      By hjayne19 · Posted

      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.