Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will The Weight Gain Stop?


twinkle-toez

Recommended Posts

twinkle-toez Apprentice

Okay, I've posted a couple of times before on these boards, but this time, I must apologize in advance if this post is kind of all over the place and frantic sounding... I'm really worried and trying not to freak so I'd really appreciate input that people have or advice...

I'm 26 years old and do not have a formal diagnosis of celiac. I however, have a host of neurological issues attributable to celiac (neuropathies, previous balance problems, gait problems, peripheral neuropathies, migraines, night sweats), as well as some of the digestive complaints, depression that does not respond to meds, iron deficiency anemia that does not respond to meds and polycystic ovaries. I should probably add that I have a history of anorexia nervosa, and am extremely nervous regarding my weight at the best of times.

I have been on a gluten-free diet for about a month now and my digestive problems are a million times better, as are the headaches and night sweats. What I find worrisome is that I've gained five pounds completely unintentionally during this time. I have always been very slim (lowest possible healthy BMI), but I"ve never had to work to maintain that. With my appetite, I find myself either completely ravenously hungry, or not hungry at all. I don't know if fluctuating between the two extremes is normal. I also find myself ridiculously thirsty all the time, and I just can't seem to quench my thirst no matter how much I drink (I plan on getting checked for diabetes early next week). I crave things like diet coke, jam, and sweet things as well (not sweet like pastry, more sweet like jelly beans and candy, but nothing seems to satisfy) which is also very abnormal for me. I've found these cravings to be much worse within the past couple of weeks... Is this normal?

During my gluten-free period I've done my best to cut out dairy, although I do slip once in awhile as I love tea, but cannot stand it without milk. I've tried to also mostly stick to a whole foods diet, although admittedly I do rice cakes as well as rice crackers. I've also re-introduced animal protein (chicken, fish, seafood) into my diet after 3 years of vegetarianism.

I guess I"m just really really worried that my weight is going to keep going up... I've read that it can go up a bit as your body starts to absorb nutrients it wasn't getting before, but I"m scared that it won't stop...Sorry for being rambly, but does anyone have advice or similar stories? Is there a way that I can force the weight to stop from increasing without being really unhealthy about it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Hi, there. I'm glad to hear you're feeling better gluten-free.

I suspect you're into some blood sugar issues that are causing the shifting hunger and sugar cravings. The rice and potatoes we rely on so heavily for carbs have a much stronger tendency to cause blood sugar spikes than wheat. Brown rice is better than white rice, and sweet potatoes better than white potatoes. Also, a lot of people who start the gluten-free diet and had malabsorption find they are suddenly hungrier as their bodies "realize" they're getting nutrition again.

Are you still working with a nutritionist? I think I remember you said you had a diet plan worked out in another post that was the right amount of calories to stay healthy? If that's the case, the best thing to do to keep from relapsing would be to work out a new, gluten-free plan that you can stick to. You will not gain weight indefinitely by eating a reasonable amount of food, especially with the exercise you get from dancing. I am sure gaining a few pounds is very troubling to you, and you also may want to see about talking to whatever counselor or doctor has helped you with body image in the past.

Good luck with it all!

Katie B Apprentice

I'm sure you've probably read up on it already but you might want to increase your intake of protein as well - something like talapia/chicken is low in calories but high in protein and should help you with your blood sugar. Not sure what the ratio of protein and fat to carbs diabetics have to follow but I know it's different than a "normal" diet. I'm sure you'll get to the bottom of it and it sounds like your appointment is soon so perhaps you could also request to see a dietician to manage all of these things - it isn't easy dealing with celiac disease along with blood sugar issues and switching from vegetarianism to eating meat again. It's not surprising you're anxious! It is hopeful that you are feeling better though and getting to the bottom of things. Sounds like once you've made it through this learning curve you'll be on the right path.

Virlomi Newbie

:)

I'm happy someone else is experiencing this weight gain. I was diagnosed with Celiac last December by the blood test, and I'm overweight.... I thought Celiac was for people who are -underweight-, so it's nice to see someone else with the same (ish) problem.

Thanks for the sweet potato idea Katie.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,145
    • Most Online (within 30 mins)
      7,748

    Kundrey
    Newest Member
    Kundrey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.