Continued Symptoms And Gluten Free?

[lcarter]

Here's something else to think about if you are continuing to have problems even though you are religious about staying on a gluten free diet. Celiac disease falls under the heading of a "Malabsorption Syndrome". It is not unusual for people with celiac disease to also have malabsorption issues with one or more of the following: dairy [all factions of milk] and fructose [found as fruit sugars + long starchy chains of fructose molecules called "Fructans"...found in wheat, plus some other foods. Sorbital, and HFCS are particularly problematic. Look up "Fructose Malabsorption" on the internet for a complete list of offending foods to avoid - be careful not to mix it up with a very serious disease with a similar name, called "Hereditary Fructose Intolerance".]. Two other frequent problem-makers for celiac disease patients are soy and corn. [There's probably others that I am not familiar with.] An elimination diet is probably your best bet for discovering what else it could be besides gluten in wheat, rye, barley...and for some of us, oats. At first, it is best to make a short list of safe foods and stick to it. Then, gradually try adding other individual offending possibilities, one at a time, every 3-5 days, or longer if you tend to have symptoms which are a delayed reaction rather than immediate. It should become very evident what is causing your continuing symptoms. Remember..."a patient can have as many diseases as he/she pleases"...so it could be more than one food causing symptoms. So, continue the elimination diet until you run through all the possibilities. Good luck...this takes some time to do on your own. Unfortunately, not many doctors are very helpful with this or knowledgeable about malabsorption syndromes in general. [i am familiar with Dairy Intolerance and Fructose Malabsorption because I have both as well as Celiac Disease. Luckily so far, corn and soy are not problematic for me.] Sure hope this helps - your situation can be sooooo frustrating! Best of luck, Linda