Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

50 Days Gluten-Free, But Problems Remain


aly25

Recommended Posts

aly25 Newbie

Hi, I am IgA deficient and exhibit symptoms of diarehha, fatigue, tension headaches, and mental fog. I have gone on a gluten-free diet prior to a biopsy and consultation with a GI and am now on day 50. Although I have noticed that my scent has changed (improved somewhat), and that my ability to breath through my nasal passage has ameloriated: I have not experienced the shock and awe of getting well. My bowel movements are still unsatisfactory, etc. I should note that my blood tests are normal, except that I am IgA deficient and have a high IgG count. A colonoscopy was negative for Crohn's, and I do not have blood in my stools. I am planning to continue the gluten-free diet for months to come, yet I am wondering what timeline folks had prior to getting better, or at least when was significant improvement noticed. I recognize that recovery proceeds on a case by case basis, but is there an average time? For example, did folks go two months without noticing much of a change and then improvement was noted by months three and four?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Have you eliminated dairy? We often need to until we heal. What are you eating? It is best to go with whole naturally gluten free foods at first. It can take some time to heal but gut issues should be improving at least a bit by now. Have you made sure your home is as gluten safe as possible? New toaster, replacing colander, not sharing condiments etc? Have you checked all OTC drugs, scripts and supplements? If not check those with the maker. Also since you are still symptomatic be sure to check your shampoos, toiletries, makeup etc.

starrytrekchic Apprentice

I had some immediate relief in symptoms--then it was back and forth for several months, gradually trending for better. New symptoms cropped up, though--around the 2-3 months mark I was exhausted for several weeks. I'd say it took about 4 months for things to really straighten out--but things were noticeably better from the very beginning.

Everyone's healing rate is different though. If I were you, I'd keep at it for six months, at least.

aly25 Newbie

Hi, thanks for the responses. Raven I will make a thorough checking of everything. Starry, I shall certain pursue gluten-free for six months or more, but was hoping to find inspiration here regarding the timeline thus far. I guess I shall require patience.

ravenwoodglass Mentor

Hi, thanks for the responses. Raven I will make a thorough checking of everything. Starry, I shall certain pursue gluten-free for six months or more, but was hoping to find inspiration here regarding the timeline thus far. I guess I shall require patience.

The timeline can vary from person to person. It can also vary system by system. Some will see gut relief fairly soon but take longer to have neuro or bone and joint issues resolve. My migraines were gone within a week and gut symptoms soon after but the other issues took much longer to resolve. Some have gut issues stop almost immediately and with others it can take a month or two. Be as strict as you can and try to avoid the most common cointolerances like the dairy and soy if you are not already.

Hope you heal soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,936
    • Most Online (within 30 mins)
      7,748

    LauraB7302
    Newest Member
    LauraB7302
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
    • Scott Adams
      My mother has celiac disease and was diagnosed with Afib around 8 months ago. She's 81 and around 2 months ago had ablation therapy done, which is a very common procedure to treat this, and has been out of Afib 95% of the time since then. Apparently the full effects of this treatment don't kick in for 90 days, so the doctors expect her recovery to possibly reach 100%. Be sure to discuss this with your doctor.
    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.