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Do I Have Dh ?


T0rM

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T0rM Newbie

Hi !

pic0098lp.webppic0131uj.webppic0370lm.webppic0241sb.webppic0258lr.webppic0366ot.webp

Please speak an easy understandable english, i'm french and very bad in english :lol:


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Carriefaith Enthusiast

http://www.kaypahoito.fi/xmedia/ima/ima00175.webp

It may be DH. This picture looks like your pictures. Have you been diagnosed with celiac?

anerissara Enthusiast

I can't view the pictures, to me it only looks like text. Is there something I need to do to see the pictures?

Carriefaith Enthusiast
anerissara Enthusiast

Thanks, that worked!

It does look like the picture that carriefaith posted, and I have seen a lot of pictures that look like both examples.

My rash is different, I get tiny clear blisters that are not very raised but are deep...they itch terribly and then later when they dry up the skin where they used to be cracks and hurts.

Here is another picture that looks similar: Open Original Shared Link

Guest Eloisa

These look really bad. Try to find a Dermatologist doctor who knows about Celiac but that definitely looks like DH.

skbird Contributor

I'm sorry - that looks painful!

I had a dream two nights ago that I had a rash just like that all over one of my legs and as I looked at it I said, wow, I do have DH. Yikes! Thankfully it was a dream.

Also looks a lot like what shingles looks like - I had that when I was 18. If DH is anything like shingles... shudder.... :o

A doctor should be able to take a sample and biopsy it and determine if it's DH.

Good luck to you -

Stephanie


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T0rM Newbie

Thanks for the support :P

I don't know if it's really DH because these rashes aren't painful/itchy at all. And there is no blisters, just liquid looking like sebum. Strange.. :unsure:

Nevermind, i'm waiting for blood results and after my doctor will do an intestinal biopsy.

Carriefaith Enthusiast

Let us know how everything goes :)

DragonQueen Explorer

Hi, did you ever get your results back? I broke out in a rash that lasted for a year and my doctor prescribed it as shingles. I think it is DH though.

  • 2 weeks later...
T0rM Newbie

Blood tests (transglutaminase / endomysium) are negative.

  • 1 month later...
T0rM Newbie

Hi !

Some news. I did endoscopy / coloscopy because i feel very very bad with gluten (chronic diarrhea, fatigue, muscles pain, headaches..).

There is no villous atrophy, just an unknown mild inflammation of duodenum, and presence of lymphoid germinal center.

I'm sure i'm definitely very sensitivite or delayed allergic (the same thing?) to gluten. A little amount of gluten give me symptoms :wacko: (piece of bread, tomato sauce with wheat starch or even rice krispies!)

Since i'm on gluten free diet, my skin problems have decreased a lot, as you can see on these pics :

http://img208.imageshack.us/img208/9846/image0020ot.webp

http://img208.imageshack.us/img208/984/image0052pb.webp

That's strange because the rashes sounded like DH : a kind of insect bites with fluid inside, and the rashes were symetric around the mouth. The only thing (and the most important) thats differs is the lack of itching/burning. :huh:

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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