Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Food Intolerances


mercury6

Recommended Posts

mercury6 Newbie

Last year I discovered I was gluten intolerant. I've done my best to stick to a strict gluten free diet ever since. As many of you already know there's a learning curve to account for, but I felt so much better it was worth sticking to. Lingering symptoms however, prompted me to see an allergist, who advised me to eliminate additional foods. Recently, I learned I cannot tolerate soy and now it seems dairy may be giving me problems.

I have no energy. I can't focus, I'm tired all the time and I don't sleep well. I'm not depressed, but I have little inclination to do much of anything. My appetite seems to be waning more and more all the time. I have little interest in food at all. I do try to eat whole foods; fruits and vegetables when I can. When I do make the effort to prepare a meal, I regret it almost immediately, despite avoiding problem foods. Eating just seems to hurt too often.

I don't understand what's happening to me. Every time I eliminate one trigger, another pops up in its place. I'm living on kefir and tea. I'm going back to my gastroenterologist in a few weeks, but I'm not very hopeful. Does anyone have any suggestions or similar experience?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lucia Enthusiast

This happened to me. I cut out gluten, then dairy, then soy and corn. Still, I was having painful stomach cramps. After awhile, everything I ate or drank gave me cramps.

I started a specific carbohydrate diet because I thought that I might have bacterial overgrowth. It's working. I don't have a diagnosis (yet), but my pain is responding to the diet.

You should consider 1) bacterial overgrowth, or 2) colitis. Both of these can be diagnosed by a doctor.

gf-soph Apprentice

You sound a lot like I did a few months back. I am now 3 months in to an elimination diet, and I have had periods of feeling amazing, and have identified some intoleranced I didn't know about before. If you're interested, have a look for a post of mine about the RPA elimination diet, as it's a complex diet to explain and I gave some detail about it there.

Also, have you had your nutrient levels checked? I have spent a long time on a rollercoaster of iron and B12 deficiency, and they really impact on my energy and appetite when they're low. It would be a good idea to get some blood tests done if you haven't already, as these sorts of deficiencies are all too common for us.

Another thing I looked into recently was whether I might have low stomach acid. That can impact on digestion and appetite, and cause food intolerances as it allows undigested food lower into the digestive tract where it shouldn't be. I don't think that's a problem for me now my system is better on the diet, but it could be worth a look.

Hope you find something that helps, I know how frustrating it is to feel worse and worse when you are trying so hard!

mercury6 Newbie

This happened to me. I cut out gluten, then dairy, then soy and corn. Still, I was having painful stomach cramps. After awhile, everything I ate or drank gave me cramps.

I started a specific carbohydrate diet because I thought that I might have bacterial overgrowth. It's working. I don't have a diagnosis (yet), but my pain is responding to the diet.

You should consider 1) bacterial overgrowth, or 2) colitis. Both of these can be diagnosed by a doctor.

Yes, I'm at the point where everything I eat gives me stomach cramps. Thank you so much for your response and your suggestions. You have no idea how much I appreciate the help. I will definitely talk more with my doctor about it. I'm also going to look into the diet.

mercury6 Newbie

You sound a lot like I did a few months back. I am now 3 months in to an elimination diet, and I have had periods of feeling amazing, and have identified some intoleranced I didn't know about before. If you're interested, have a look for a post of mine about the RPA elimination diet, as it's a complex diet to explain and I gave some detail about it there.

Also, have you had your nutrient levels checked? I have spent a long time on a rollercoaster of iron and B12 deficiency, and they really impact on my energy and appetite when they're low. It would be a good idea to get some blood tests done if you haven't already, as these sorts of deficiencies are all too common for us.

Another thing I looked into recently was whether I might have low stomach acid. That can impact on digestion and appetite, and cause food intolerances as it allows undigested food lower into the digestive tract where it shouldn't be. I don't think that's a problem for me now my system is better on the diet, but it could be worth a look.

Hope you find something that helps, I know how frustrating it is to feel worse and worse when you are trying so hard!

I had numerous tests a year or so ago, and a recent CBC, but it looks as though I need to follow up. I will look further into the RPA elimination diet. Thank you so very much for the suggestion. And yeah, it is frustrating. I appreciate that you understand. Thanks again!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,993
    • Most Online (within 30 mins)
      7,748

    Kelly C
    Newest Member
    Kelly C
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.