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Undiagnosed Illness 6 Years

undiagnosedillness

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undiagnosedillness Newbie
undiagnosedillness
Posted

Just wanted to say a quick hello to everyone :) (and hope I've picked the right section to post ?

I've been undiagnosed for just on 6 years now, many different symptoms, my own research lead me here B) no harm in trying the gluten free diet even though testing was negative.

After reading several pages here it seems alot of people suffer a whole range of health problems you'd never think gluten intolerance could answer for .....

Anyway I hope to find the answers to my undiagnosed illness, still struggling after all this time so I've just started the gluten free diet this week

Cheers

Samantha

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ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. I hope you are feeling better soon. There is a lot of support here. Ask any questions you need to as the first couple months can be difficult.

undiagnosedillness Newbie
undiagnosedillness
Posted
  • Author

Thanks for the welcome :D

Im shocked at how many people have health issues because of undiagnosed gluten intolerance, I feel like I've hit a gold mine with all this info !

Cheers

Samantha

Welcome to the board. I hope you are feeling better soon. There is a lot of support here. Ask any questions you need to as the first couple months can be difficult.

jackay Enthusiast
jackay
Posted

Have you gone gluten free or are you getting tested first?

undiagnosedillness Newbie
undiagnosedillness
Posted
  • Author

I haven't had any testing done in years, once back in 2005 which was negative. I have no faith in Doctors so just trying my luck with a gluten free diet because I've got alot of bowel issues and the first week gluten free I must say feels good, sorry if too much info but I haven't been constipated this week and that is very very rare for me so I must be onto something :)

PS- I've had so many tests/scans in the past which all came back normal so I just don't trust Doctor or machines these days.

I've tested positive to IBS, Fibromyalgia, Costochondritis, Neuropathic pain, the list is endless I could go on and on :rolleyes: and Doctors can't help me so it's time for some big Diet changes, I really didn't think food could cause so much pain but perhaps it is causing some of my health concerns ???

Sorry I tend to babble abit :D

Samantha

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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