Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results Lost


baggotlane

Recommended Posts

baggotlane Rookie

Dear All,

The lab that did my initial stool testing now says 10 weeks later that they lost the results! The lab is a well-known nationwide corporation - LabCorp. I have called for the results every week after the first and they said they were still working on it. Now they admit that they lost them. The trouble is not simply redoing them - I was on gluten then and went gluten-free a day later. It may take months to recover that initial condition.

If they lose things like stool samples, not simple small items in this case, what else can they lose? Can we trust them? I have told my doctor I will not be tested by them again, even though they have their offices in the hospital I attend. And if they can make mistakes like this how many more do they make that we do not hear about? Or how many are not really the results of a particular patient?

This is serious stuff, affecting the lives of patients. I think we should raise our voices to congress to investigate. I have read revcent reports of overcharging or mis-charging.

Andrew

San Diego


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



giselleacttwo Newbie

I'm sorry, that must be so frustrating. I can see why you would be very angry.

A few months ago I was scheduled for an emergency c-section. My doctor did an amniocentesis (a very hairy procedure, which involved 3 VERY large needles being stuck in my VERY pregnant abdomen) to check for fetal lung maturity. My c-section was scheduled the next day pending the lab tests, which were flown out of state(to San Diego, actually LOL) to be done by a certain lab. Lo and behold, just as I was getting prepped for surgery, with IV already in place they called the lab and the results were lost! We couldn't go forward with the surgery without it, and we ended up losing valuable time which could have endangered my life or my baby's. Fortunately, all turned out well in the end, but it was a long and frustrating ordeal which resulted in some not too pleasant words said about that lab.

Anyway, my point is, I concur that something needs to be done. It is no small thing when labs get lost and peoples' lives are at stake.

baggotlane Rookie

Well, The problem is worse than getting things lost. Getting things lost is just when the problems are seen. But, what percentage of cases are mishandled or mixed up internally? We will never know.

I have had another experience of late with this lab. They had to do special tests, not commonly done for my blood analysis (nothing to do with all the typical Celiac tests). Several weeks after it was done I was called back in to get it redone because the staff had not been told that for this case the blood had to be keep chilled after withdrawing it. I am glad that they found out in time on this occasion.

But, together with all the cases I hear about people getting billed for the wrong tests or tests not being done I fear we are using a very expensive and unreliable resaource. In my case I asked for second tests to be done - and yes there were real differences! In future I may seek a second lab for each test.

My message is - it is important to investgate the accuracy and reliability of the testing lab before one goes ahead, as I see here so often, to balme or question the doctor.

Andrew

celiac3270 Collaborator

I understand how frustrating that must be. Prometheus is probably the best lab for celiac testing.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748

    Jem68
    Newest Member
    Jem68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.