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Celiac Disease & Diabetes

michelle4breyer

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michelle4breyer Newbie
michelle4breyer
Posted
B) I have both Celiac Disease and Type 1 diabetes and am hoping to meet others living with both diseases and how you deal with it. I've had diabetes most of my life, but was diagnosed with Celiac Disease a year ago, although after a lifetime of symptoms.
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Guest Eloisa
Guest Eloisa
Posted

You poor thing! There are lots of foods that you can buy off the internet that are gluten free and sugarfree. Search the web for gluten free food stores then you can look around and see if they are sugarfree. Sometimes they will state in the ingredients or they'll state that they are sugarfree too.

gfteen Rookie
gfteen
Posted

Hi!

I'm Ginny and I'm 15 years old. I, too, have both Celiac and Diabetes Type I. I know how you feel - finding diabetes-friendly gluten-free food is very difficult. However, ever since I got my insulin pump a year ago, my diseases have become easier to have together. But, if are unable to get a pump, perhaps changing your diet would be easier. Maybe instead of relying mostly on manmade gluten-free food like cookies and bread, etc., you could base most of your diet off of naturally gluten-free foods like fruits, veggies. This may help spikes and such. Anyhoo, my IM is munki109 in case you want to talk diabetic to diabetic, celiac to celiac.

-Ginny

mbigbee Newbie
mbigbee
Posted

Michelle, my daughter Shelby (6) will be going on the pump in August. It is such a pain for us both finding gluten-free carbs (avg 40carbs per meal)that she likes. Now that u r on the pump do u eat alot less carbs (15-20) then before? I feel like we are practically shoving food down her. The only fruit she will eat is Stawberries...way low carbs or applesauce. She has lactaid 13carbs with meals. I am hoping with the pump it will be easier. Has it been for you? Do you eat alot less carbs now?

mbigbee Newbie
mbigbee
Posted
:) oops! i meant for the previous post to be for Ginny....sorry.
terryjean Rookie
terryjean
Posted

Hi! Yes I am celiac and have diabetes also.......... I take Amaryl 1 mg in AM and glucaphage xr 2000mg in PM..................I have such a tough time with both diets........ !

But I am dealing with the diabetes diet.............. especially when the asthma kicks in and I go on prednisone............. up goes my bloodsugar :o .

Terry

Dumont NJ

  • 3 months later...
lorka150 Collaborator
lorka150
Posted

Hey everyone!

What were your main symptoms from the diabetes?

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terryjean Rookie
terryjean
Posted

My main symptom from the diabetes was the horrible feling of the highs and the lows of my blood sugar ........... also voiding alot! and I mean alot!!! Extreme thirst was there too.

Hugs Terry:)

quote=lorka150,Oct 10 2005, 09:12 PM]

Hey everyone!

What were your main symptoms from the diabetes?

<{POST_SNAPBACK}>

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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