Negative Test

[annpat]

I am a 42 year old female. For about a year now i have been battling abdominal pain on the left side under ribs and left groin area. In the past 6-8 months i have frequent stools, possibly 10 per day. stools are soft. I have horrible gas and am very bloated, fatigue, head ache (which i often have anyway). My joints hurt so bad it is often difficult to walk. In general i just dont feel good. My family physician did ct scans, upper gi, edg, colonoscopy, checked gallbladder. test show inflamation in esophagus and colon, small amount of colitis, hiatal hernia and acid reflux. He finally sent me to a GI doc who did a stool sample and found salomenlla but then sent it to state health dept and they said it is not salmonella but citrobacter which does not match any of my symptoms at all. GI Doc is going to repeat colonoscopy and EGD in november. Does anyone have any advice? The GI doctor told me i am a mystery. I fell like no one is ever going to figure it out and i am tired of being sick.

[Dixiebell]

Have you had any testing for celiac? There also is a newer test ,DGP, that is supposed to be more sensitive.

[adab8ca]

I am a 42 year old female. For about a year now i have been battling abdominal pain on the left side under ribs and left groin area. In the past 6-8 months i have frequent stools, possibly 10 per day. stools are soft. I have horrible gas and am very bloated, fatigue, head ache (which i often have anyway). My joints hurt so bad it is often difficult to walk. In general i just dont feel good. My family physician did ct scans, upper gi, edg, colonoscopy, checked gallbladder. test show inflamation in esophagus and colon, small amount of colitis, hiatal hernia and acid reflux. He finally sent me to a GI doc who did a stool sample and found salomenlla but then sent it to state health dept and they said it is not salmonella but citrobacter which does not match any of my symptoms at all. GI Doc is going to repeat colonoscopy and EGD in november. Does anyone have any advice? The GI doctor told me i am a mystery. I fell like no one is ever going to figure it out and i am tired of being sick.

Hi

I am sorry that you are feeling so ill. I am also 42 and was a medical mystery but my problems were mostly neurological and weight loss and one of the million specialists I saw ran a huge number of autoimmune tests that ulyimately showed Celiac, proven by biopsy and even now, the Dr's hardly believe it. It is a HUGE mimic of other things.

Did you have any of the antibody testing done? Tests that you may want to request are total IgA, Tissue transglutanimase (ttg) and EMA. I also had the gliadin antibodies done (IgA Gliadin and IgG GLiadin). When they did the endoscopy, I presume they found nothing unusual? Biopsies can be falsely negative as can blood work. If your testing is still inconclusive, I would suggest that you try a gluten free diet and see if you feel better. Many people with GI symptoms feel some relief in a relatively short time. (Us neuro celiacs have a slightly different road, it can take much much longer)

I hope you get some answers soon.

ada