Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Gluten Withdrawals

kenvj

By kenvj
in Coping with Celiac Disease

Recommended Posts

kenvj Newbie
kenvj
Posted

I have suffered from severe Chronic Fatigue for more years than I can remember. I went on a course over two years ago which involved things like meditation, NLP, and the like. It also recommended a dairy free and gluten free diet. I recovered really quickly, after 2 or 3 months I felt great but I didn't ever think the recovery had to do with going gluten free. From that point on I very gradually went back onto gluten food and very gradually my fatigue came back, I completely gave up the gluten-free diet a few months ago and my fatigue became intense. I finally got around to wondering if it was in fact the gluten which was causing my problems and on the 21st of August I went onto a total gluten free diet. First 5 days nothing happened and then I started with awful withdrawals, flu like symptoms, headaches, aching muscles and night sweats and general malaise. It lasted for 5 weeks and then died down. Since then I have had another 3 bouts of withdrawals lasting for 3 or 4 days. I am just recovering from the last one. Overall I am getting a bit more energy but I've a long way to go to feeling good. Anyone know how long these withdrawals can last?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

I would check all of your foods and make sure you are not getting gluten from anywhere and you might want to just skip processed foods for a while. Some people react to very small amounts of gluten. It is possible that you might be reacting to something else like dairy, corn or soy, just to name a few.

Something you might want to do is get your vitamin levels checked. It may be that you are low on some of them. Vit D comes to my mind first because I went through the same thing. I also started taking B complex, fish oil and the D along with eating gluten-free, I have felt so much better. I can actually work around my house again instead of taking naps all day.

cassP Contributor
cassP
Posted

you might also wanna see your doc for a checkup- many of us had to correct b12 or D deficiencies, or thyroid problems.. and as above poster said- there may be additional intolerances like soy dairy and corn

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,749
    • Most Online (within 30 mins)
      7,748
    tatish201
    Newest Member
    tatish201
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Burning sensation when I wake up

      By knitty kitty · Posted

      @Healthforme, No prescription needed for thiamine hydrochloride, Benfotiamine, and TTFD (Tetrahydrofurfuryl Disulfide).  They are available over the counter.   Thiamine Mononitrate is not recommended because the body doesn't absorb or utilize it well.  
    • knitty kitty
      Burning sensation when I wake up

      By knitty kitty · Posted

      @Zuma888,  I'm so happy you're feeling better!   Thanks for letting us know of your improvement!
    • RMJ
      Help with genetic testing

      By RMJ · Posted

      HLA-DQ2 is NOT a continuum 2.01 to 2.99, but I don’t understand HLA genetics well enough to explain it further.  It is not just one gene that is either this or that.
    • trents
      Help with genetic testing

      By trents · Posted

      Okay, I'm taking a guess here. We are used to hearing in layman terms that having either the HLA-DQ2 or the HLA-DQ8 gene, either heterozygous or homozygous, presents the possibility of developing active celiac disease. So, I'm guessing that the HLA-DQ2 gene is actually a range of variants (2.01-2.99) with HLA-DQ 2.5 being in the centerpiece of the range. I'm also guessing that "permissive" is equivalent to "possessing the possibility" to develop active celiac disease and does not address the issue of hetero vs. homozygus per se. But the fact that 2.01,2.01 is a couplet may indicated homozygousity? All wild guesses.
    • Kirita
      Help with genetic testing

      By Kirita · Posted

      I received the results that my child has the genes for celiac disease (she is still undergoing testing and it has been complicated). Can someone explain if this is homozygous HLA DQ 2.5 or not? The interpretation just says permissive for celiac disease. Thank you! DQ Alpha 1  05:01, 5 DQ Beta 1 02:01, 02:01 DQ serologic equivalent 2,2     
×
×
  • Create New...