Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swollen Lip?


jessicalw28

Recommended Posts

jessicalw28 Apprentice

This morning I woke up with a swollen upper lip and puffy eyes. I am not diagnosed celiac and I am still eating gluten. I have had a lot of GI issues and have suffered with hives the past few months and many other celiac related symptoms my whole life. I am in the process of attempting to get diagnosed. I have not started the diet yet because the doc wants to do intestinal biopsies. GI doc told me to cut out dairy and gave me an antibiotic (xifaxan). The antibiotic is to rule out small bowel bacterial overgrowth. It is a 14 day treatment and I'm on day 11. I do not think it would have taken this long to have an allergic reation to the medication. My hives are not much better, but my GI problems are about 50% better. I am thinking cutting out most dairy (mainly lactose) has helped. I have never had a reaction like this before. My hives are usually just red patches or bumps on the surface of the skin. I am not allergic to anything that I know of. Lactose intolerant, but not dairy allergic. I did have a pretty good amount of gluten yesterday (muffin at breakfast, birthday party involving beer and cake, chicken pot pie for dinner), but like I said, I'm not for sure diagnosed yet. Has anyone ever had this kind of reaction to gluten or dairy? I took benadryl and most of the swelling has gone down but I'm scared I may wake up tomorrow with my throat swollen!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

What you describe is an allergic reaction, NOT a celiac reaction. Please call your doc - you guys need to find out what you're allergic to ASAP.

Dixiebell Contributor

Xifaxan

What side effects may I notice from receiving this medicine?

Side effects that you should report to your doctor or health care professional as soon as possible:

jessicalw28 Apprentice

What you describe is an allergic reaction, NOT a celiac reaction. Please call your doc - you guys need to find out what you're allergic to ASAP.

I've had hives constanly since June. I've been tested for allergies (food and environmental), nothing came back positive. I've seen an allergist and an immunologist. Their diagnosis was chronic idopathic urticaria. It is an apparently an autoimmune reaction and so is celiac. The benadryl is helping right now. If the swelling is still there in the AM I am calling my GI doc and immunologist. I have many other symptoms that point to celiac and I'm trying to find out if I have it. I also have GERD, anxiety, eczema, keratosis pilaris, diarrhea and constipation, fatigue, irregular periods, lactose intolerance, etc.

jessicalw28 Apprentice

Xifaxan

What side effects may I notice from receiving this medicine?

Side effects that you should report to your doctor or health care professional as soon as possible:

tarnalberry Community Regular

Reactions to medications can occur at any time - and often do take a number of days to develop.

jessicalw28 Apprentice

No swelling this morning. I took benadryl all day yesterday and before bed last night. For now I guess I will keep taking the antibiotic. I just have to take it today and tomorrow. Once I am off of it for a couple of days, I will be calling the doc to schedule biopsies. I don't think it helped much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.