Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac, Genetic Or Bacterial


junevarn

Recommended Posts

junevarn Rookie

Hi all,

I haven't written in a while since I have been going to a new doctor who validates my gluten intolerance. I was diagnosed with three infections, received medications and am on the mend. :D

I was on another support site at the yeast connection and a person there didn't believe that this is a genetic disorder. She thinks that it is caused by the wrong bacteria in the gut. There is an article on celiac.com that addresses this but its only one article. All of the information I have read says its genetic.

I said that its very important to be gluten free and she basically said that because I'm a nurse thats why I think its genetic. :huh:

I just want your input on this. Needless to say it upset me somewhat .I know that not everyone with the gene has intestinal damage but my understanding is that other immune diseases could manifest.

PLease let me know your thoughts and feelings on this subject. I think she said that she and her child had antibodies in the blood.

Thanks.

Sincerely,

June


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

It's a genetic autoimmune disorder and requires a life long gluten free diet to control it.

Some people with the gene do not have the celiac activated but they still have predisposition to it.

Celiac can be activated by things such as childbirth, viral & bacterial infections, surgery, stress, etc.

Carriefaith Enthusiast

Where does she get her info? Unless she can back up her statements with scientific proof ie. scientific journal articles or credible websites... then I wouldn't believe her statements.

Here are a few good articles that say that celiac is genetic:

Open Original Shared Link

Open Original Shared Link

tarnalberry Community Regular

There may be other causes of intolerance to gluten than celiac disease, but the genetic cause of celiac disease, and the variation in the immune antibodies it produces, has been well researched. There's a reason there's a genetic test for it.

junevarn Rookie

Thank you. I knew I was right. If someone has positive antibodies in the blood thats a conclusive test for celiac, right?

June

KaitiUSA Enthusiast

Depending which tests were done(some are more specific and reliable than others) but yes

Carriefaith Enthusiast

The tissue transglutamase test is highly specific for celiac disease.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



junevarn Rookie

Thank you so much for answering my questions!! I have one of the main genes for celiac so I'm staying away from gluten no matter what anyone says! I don't want to run into more problems in the future. :(

Thanks,I just needed some validation. Sometimes its hard out here. Its hard enough to deal with this problem ,never mind people who challenge you. :angry:

Sincerely,

June :D

Carriefaith Enthusiast
Its hard enough to deal with this problem ,never mind people who challenge you.

Yea... it's usually not worth arguing with people about stuff like that, there's not much you can do to change people's minds sometimes. Even when there is evidence that you are right. Oh well that's life ;)

nannyb Rookie

Hope this is not too late to chime in to the discussion. I think your informant was only partially correct. Of course celiac is genetic. Yeast intolerance is I believe genetic as well. (or at least the propensity toward it) From what I have read in some people the candida reaction often comes first before the celiac is triggered. The wrong bacteria in the gut sets off the reaction that ends in a celiac state.

I know that is what happened to me. I have been yeast intolerant for 20 + years, then diagnosed with Colitis six years ago and the yeast intolerance problem normalized somewhat. The timing of the two events was too coincidental to not be related. I think that the celiac was triggered at that time.

After all they are all autoimmune disorders of the gut. Why would anyone say they couldn't be related. When the body misfunctions in one manner it certainly can in another.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,654
    • Most Online (within 30 mins)
      7,748

    Uli
    Newest Member
    Uli
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.