Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Constipation


gemstar8069

Recommended Posts

gemstar8069 Newbie

y 6 year old has been suffering from chronic constipation since she was two. I started to notice because just before she was two she was trained for peeing. but she would poop these little poops smears or sometimes D all day long up to 10 x or more a day. so i took the pull-ups away thinking she was being lazy. not the case at all. started taking her to the doc they gave her laxatives enemas told me once that it was my potty training told me that she was severley impacted. the had her on restorolax for a year and the pediatrition signed off on her case. i had to get another referal to see him again. i went and demanded he send me to a gastro doc. we have an app for them in jan. my family doc is sending us to calgary to a childrens clinic that speacializes in children who soil are constipated or wet the bed things like that so we are to go there in dec. i am waiting on test results from my doc for celiacs and her Iga and igg levels aswell. has anyone had any ting similar. right now we relive her constipation with an enema because that is what we were told to do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mizzo Enthusiast

y 6 year old has been suffering from chronic constipation since she was two. I started to notice because just before she was two she was trained for peeing. but she would poop these little poops smears or sometimes D all day long up to 10 x or more a day. so i took the pull-ups away thinking she was being lazy. not the case at all. started taking her to the doc they gave her laxatives enemas told me once that it was my potty training told me that she was severley impacted. the had her on restorolax for a year and the pediatrition signed off on her case. i had to get another referal to see him again. i went and demanded he send me to a gastro doc. we have an app for them in jan. my family doc is sending us to calgary to a childrens clinic that speacializes in children who soil are constipated or wet the bed things like that so we are to go there in dec. i am waiting on test results from my doc for celiacs and her Iga and igg levels aswell. has anyone had any ting similar. right now we relive her constipation with an enema because that is what we were told to do.

My girl was diagnosed at almost 7yrs old. After almost 2 yrs of being treated for severe constipation and compacted stool in her outstretched colon and on Miralax for 1 1/2 yrs of that time she was finally diagnosed with Celiac disease.

It took a GI specialist to get the diagnosis. Our Pedi was treating her for the constipation with encouraging high fiber and whole grains increases in her diet. This is when the daily stomach pains started.

At 7 1/2 she still has outstretched colon (6 month gluten-free) cannot stay dry thru the night and when she gets accidental gluten has diarrhea accidents also. It's a long process of healing but she is soo much better on the gluten free lifestyle.

We were also very close to the cleansing enema's, but chose to do weekend cleanings with milk of magnesia instead. Wel'd start on Friday after school and did this for a months long of weekends.

Haven't had any problems after the first 2 months going gluten-free

Maureen

good luck

T.H. Community Regular

I had constipation for years, off and on, that I thought was a problem that had developed because of my first pregnancy - nope, it was all gluten, for me. I notice it as a reaction now when I get gluten. If you are waiting results, it couldn't hurt to go off gluten, just in case - there's always non-celiac gluten intolerance, too, where the tests are negative. Might be nice to have some idea of how going gluten free might affect your little one, before you have test results to bias you, as odd as that may sound.

srall Contributor

My daughter is not diagnosed but I have her on a gluten free/dairy free diet. We are both still on a big health journey. I think after Thanksgiving we will both be going through some diagnostic testing to really figure out what we are reacting to. That said, I will tell you that my daughter age 7 has dealt with severe constipation and severe diarrhea from the get go. I'm not sure I'd consider her regular now, but after going gluten free she is complaining less and less about her stomach. I have to believe that constipation is not normal and must be a result of diet. I do wish you the best of luck. I know it's a tough road.

Mizzo Enthusiast

My girl was diagnosed at almost 7yrs old. After almost 2 yrs of being treated for severe constipation and compacted stool in her outstretched colon and on Miralax for 1 1/2 yrs of that time she was finally diagnosed with Celiac disease.

It took a GI specialist to get the diagnosis. Our Pedi was treating her for the constipation with encouraging high fiber and whole grains increases in her diet. This is when the daily stomach pains started.

At 7 1/2 she still has outstretched colon (6 month gluten-free) cannot stay dry thru the night and when she gets accidental gluten has diarrhea accidents also. It's a long process of healing but she is soo much better on the gluten free lifestyle.

We were also very close to the cleansing enema's, but chose to do weekend cleanings with milk of magnesia instead. Wel'd start on Friday after school and did this for a months long of weekends.

Haven't had any problems after the first 2 months going gluten-free

Maureen

good luck

I forgot to mention we were also told to sign up for the "Incontinence classes" in the Urology dept. at children's hospital. They figured her accidents were bad potty training habits. NOT!

We are our children's only advocates.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,032
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.